Kristen Bell
Talks About Epilepsy
Greg Grunberg
Talks About Epilepsy
J.J. Abrams
Talks About Epilepsy
Zachary Quinto
Talks About Epilepsy
John Mayer
Talks About Epilepsy
Roger Cross
Talks About Epilepsy
Hayden Panettiere
Talks About Epilepsy
Milo Ventimiglia
Talks About Epilepsy
Chris Pine
Talks About Epilepsy
Talk About Different Causes
Epilepsy
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The Importance of Epilepsy Research with Zachary Quinto & Steven Schachter, M.D.
Zachary Quinto (IMDB) Greg Grunberg (IMDB) Steve Schachter, M.D. (Profile)
Zachary Quinto talks about epilepsy awareness and the current state of research surrounding the treatment of seizure disorders.
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For the Siblings of People with Epilepsy with Sarah Jane Morris & Brien J. Smith, M.D.
Sarah Jane Morris (IMDB) Greg Grunberg (IMDB) Brien Smith, M.D.
Sarah Jane Morris talks about epilepsy awareness and the issues faced by siblings of those suffering from epilepsy and seizure disorders.
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Telling your Friends You Have Epilepsy with Kristen Bell & Novette Green, R.N.
Kristen Bell (IMDB) Greg Grunberg (IMDB) Dr. Novette Green, DNP, ARNP
Kristen Bell, star of Veronica Mars and Heroes, talks about the importance of letting your best friends know about you epilepsy, especially if you have seizures.
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Wellness with Derek Theler & Patricia Osborne Shafer, RN, MN
Derek Theler (IMDB) Greg Grunberg (IMDB) Patty Shafer, R.N., M.N. (Profile)
Living with seizures can be a challenge, but one way to help is to make sure you are maintaining a healthy lifestyle. This includes exercise, eating right and doing activities to help your relax and reduce stress.
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Morning Glory NYC Premiere
Harrison Ford (IMDB) J.J. Abrams (IMDB) Rachel McAdams (IMDB) Jeff Goldblum (IMDB)
New York City, Sunday November 7, 2010 -- On the red carpet at the premiere of new movie Morning Glory, Harrison Ford, JJ Abrams, Rachel McAdams and Jeff Goldblum talk candidly about what its like to have epilepsy in his family, and his hopes for a cure. Other interviewees featured include co-stars Patrick Wilson, Arden Myrin, J Elaine Marcos, Alice Callahan, Rick Younger, plus singer Natasha Bedingfield (featured song Strip Me from the soundtrack), producer Sherryl Clark, Morning Glory writer Aline Brosh McKenna.
Read moreTeam Behind Talk About It
Greg Grunberg
Ken Lowenberg
Phil Gattone
Thanks to our sponsor
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@TalkAboutItOrgRT @greggrunberg: If you witness a #seizure, never ever stick anything in their mouth. They cannot and will not choke on their own tongue. That is a myth. Educate yourself at https://t.co/cLA0xUZJBk https://t.co/J8m9MNKuiR
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@TalkAboutItOrgLoving all the amazing, thoughtful, wonderful comments from our community. THANK YOU! Talking about it together just helps make us all stronger together. Keep it going… #EpilepsyAwareness
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@TalkAboutItOrgMay is #MentalHealthAwarenessMonth. While #epilepsy is NOT a mental health condition, living with #seizures can have an impact on mental health. This is a great summary of epilepsy, health, & wellbeing from our friends at Epilepsy Foundation in Australia: https://t.co/ZJO3ZZbd1o
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@TalkAboutItOrgMore amazing advice from our community. Keep it coming… and thank you…! https://t.co/IKxlS6dzml
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@TalkAboutItOrg@treegal2700 @yaz_golding Keep a list of the good and happy and joyful in your life. When times are tough or rough, turn to that list and focus on one or more of those things. Happiness, joyfulness, and relaxation — They can be elusive but reminders and mementos will help you get there. And help you focus
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@TalkAboutItOrgExcellent advice for someone newly diagnosed with #epilepsy - and just living with #seizures every day. https://t.co/x00Wp0oKxv
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@TalkAboutItOrgMore excellent advice from our community for people newly diagnosed with #epilepsy. https://t.co/yDPsrO9Mmx
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@TalkAboutItOrgIf someone you know has just been diagnosed with #epilepsy, what advice would you give them?
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@TalkAboutItOrgThis week is #NationalNursesWeek. Our health care teams are so important, and nurses are the heart of the team. We salute -- and thank from the bottom of our hearts -- all the amazing nurses who look after us and our loved ones. https://t.co/qoRKlw7z6K
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@TalkAboutItOrgReally looking forward to this..! Thank you @BrainandLifeMag! https://t.co/SIpRhz1ppK
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@TalkAboutItOrgThank you @EpilepsySWO for TalkingAboutIt https://t.co/pPNLTQ2Diz https://t.co/pACbCO7gYd
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@TalkAboutItOrgYou have heard us say this & we will never stop: If you do not have seizure control or the quality of life you deserve -- NEVER SETTLE! Keep seeking out options that are always on the horizon! This article is a good overview of latest & upcoming therapies: https://t.co/LWmoDWujn8
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@TalkAboutItOrg#HappyMothersDay to all the amazing moms out there. Our caregivers, our best friends, our confidants. What would we do without you?
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@TalkAboutItOrgHow are you at "self-management" of your #Epilepsy & #Seizures? Super important... “Self” does not mean alone! Engage the right friends, family, & caregivers to help you. Also, take a look at this amazing program called #PACES by our friends @CDCChronic https://t.co/Qcimusyf5s
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@TalkAboutItOrgSTRIKE BACK against your seizures with A NEW HOPE that you will USE THE FORCE of new medications and therapies in the pipeline toward THE RISE of seizure freedom. #MayThe4thBeWithYou https://t.co/2vgGp1mOyI
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@TalkAboutItOrg@ThePoppity @greggrunberg Thank you… for all you are doing as a mom and as an advocate. We appreciate you and all the amazing caregivers.
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@TalkAboutItOrgSTRIKE BACK against your seizures with A NEW HOPE that you will USE THE FORCE of new medications and therapies in the pipeline toward THE RISE of seizure freedom. #MayThe4thBeWithYou https://t.co/6SNAV99QRF
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@TalkAboutItOrg@EFNENY Awesome! Thank you! #MayThe4thBeWithYou
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@TalkAboutItOrg@BrainAblaze Devastating… thank you for sharing the story so we can all remember Lazar and keep his family and friends in our hearts.
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@TalkAboutItOrgOur friends at @SudepAction have helped create today’s #OnlineEpilepsyMemorialDay. We will hold a moment of silence and light a candle for all who have been lost from epilepsy and #SUDEP. May their memories be a blessing. https://t.co/ebm6F4HiGL
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@TalkAboutItOrg
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@TalkAboutItOrgLove this!! Thank you. @ovi8!! https://t.co/7WYzd1DFGO
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@TalkAboutItOrgRT @greggrunberg: No BS! Okay maybe a little. Loved being on @mrjasonbailey podcast. Check it out: https://t.co/W31otjg30E" target="_blank">https://t.co/W31otjg30E
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@TalkAboutItOrg@pitterpugesva @BrainAblaze @greggrunberg Healthy weight is always good. But the ketogenic diet for epilepsy is a special and specific medically curated diet for potential seizure reduction and control.
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@TalkAboutItOrgWe just got another stark and sad reminder that “invisible conditions”need more attention, more funding and at least as much awareness as more “visible conditions.” #RIPNaomiJudd Our thoughts and prayers are with her family and friends.
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@TalkAboutItOrgName one thing everyone needs to know about #epilepsy.
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@TalkAboutItOrg
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@TalkAboutItOrgThis cannot be said enough, so we are saying it again: A person with #epilepsy is NOT CONTAGIOUS and cannot give epilepsy to another person.
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@TalkAboutItOrgThank you… and to your team, too! Doing what we do for this community is a huge honor … and a reminder that no one is alone! #EpilepsyAwareness https://t.co/bE6bZhBH7D
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@TalkAboutItOrg.@GregGrunberg met with some amazing guests this week. New podcast episodes coming soon. Catch up at https://t.co/NbHmKtbPOr
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@TalkAboutItOrgOne of the most common triggers for seizures is stress. One way we love to help reduce stress is to take a walk in the great outdoors. How do you help reduce stress? #EarthDay2022
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@TalkAboutItOrgThat absolutely sucks. So sorry to hear it. Stay strong. You’re going to get through this. https://t.co/RtRzgV2OCS
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@TalkAboutItOrgMake sure you check out the amazing and powerful new short film "Under the Lights." #EpilepsyAwareness https://t.co/0JIhrZmqQ5
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@TalkAboutItOrgThank you for the amazing and important and insightful responses. Keep them coming…
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@TalkAboutItOrg@flowcari Very well put and important comment. Thank you!
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@TalkAboutItOrgSpeaking of caregivers and the radio, what word or phrase would you want broadcasted to the world to describe your favorite caregiver? https://t.co/8B8jMKilNE
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@TalkAboutItOrgNot a surprising report, but important — #seizure frequency has a big impact on the risk of depression. Please NEVER, EVER, SETTLE if you are still having seizures. New treatment options are becoming available often. https://t.co/atzehtQzX3.
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@TalkAboutItOrgHere’s to all our best animal friends on #NationalPetDay. Hugs and pets to all the #seizure dogs and every dog and cat and other pet who gives us comfort and joy.
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@TalkAboutItOrgCelebrate #NationalSiblingsDay with this important message from @greggrunberg and @MiloVentimiglia https://t.co/RXyyb1sfWy
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@TalkAboutItOrg@Codykuiperclark We stand with you, Cody. Thank you for talking about your seizures… we hope you have a future without them, too.
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@TalkAboutItOrg@0ttrSpace … And thanks for all your help and support in helping end stigma.
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@TalkAboutItOrg@0ttrSpace So important! Thanks for the comment.
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@TalkAboutItOrg@LightningMonk Thank you! Keep talking about it. That’s one of the best ways we can all work together to get rid of this stigma!
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@TalkAboutItOrg@LightningMonk Diet and overall nutrition. Super critical. For everyone really. So glad it helps with your seizure control. Thanks for sharing the advice!
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@TalkAboutItOrg@tuggerthekink81 The community on here is unmatched in passion and commitment. Thank you for your advice and comments.
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@TalkAboutItOrg@DCClifford So very true!
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@TalkAboutItOrgToday is #WorldHealthDay. What’s the most important thing you do to help your health?
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@TalkAboutItOrgNew episode! Great series! Thank you @greggrunberg and @JazzPharma for helping highlight the importance of caregivers everywhere. https://t.co/CgeCRJMEqc
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@TalkAboutItOrg@roslyn_nicole Yes they do. Sorry you are sore but glad you are home and trying to relax.
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@TalkAboutItOrg“There was no trauma; it just happened...No one knows why.” More than 50 percent of #epilepsy has no known origin. But there are lots of encouraging treatment options. For example, here is 46-year-old Aaron Alejos' story of his diagnosis and brain surgery. https://t.co/fuRu97DX8S
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@TalkAboutItOrgToday is #WorldAutismAwarenessDay. Many people live with both #Autism and #Epilepsy. To learn more about the connection, check this out from our friends at @CureEpilepsy: https://t.co/KsbMXVbx2W
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@TalkAboutItOrg#epilepsy and #seizures should never stop you from reaching for your fullest potential. Just ask Noah Adams, a Michigan teenage wrestling champion. https://t.co/cSjpbWECT7. (thank you @TomTV23 for talking about Noah’s story in @michigans_thumb)
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@TalkAboutItOrgOur thoughts and best wishes are with #BruceWillis as he retires from acting. Here is a good summary from @nytimes about #aphasia. https://t.co/5hOW78vQrc
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@TalkAboutItOrgThank you to @UBuffalo student (& sr. news editor) Jack Porcari for talking about his #epilepsy in @UBSpectrum: "I have finally accepted that it is OK to have a different rhythm in life and take care of myself how I see fit, despite what others may think." https://t.co/GAKuR40kSH
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@TalkAboutItOrg1 of many takeaways from yesterday’s @DrDrewPodcast — Caregivers need to make sure they look after themselves, too. Like @greggrunberg said, it’s like when the airplane attendants tell you to put on your mask first before helping others - make sure you are good to help loved ones
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@TalkAboutItOrgThank you @drdrew and @greggrunberg for an excellent episode of the Ask Dr. Drew podcast. All about #epilepsy and #seizures and so much more… https://t.co/lRUZHMjJap
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@TalkAboutItOrgRT @greggrunberg: Hey #Caregivers, I’m talking about my new #TheCareGiverSeries on @DrDrewPodcast w/@drdrew today at 3PM LIVE! Join us! https://t.co/ZDkFzILR9y
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@TalkAboutItOrgI’m sure Greg will ask @drdrew on @DrDrewPodcast today at 3pm LIVE! https://t.co/vMNGeikJ6b https://t.co/10OvQQBJZN
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@TalkAboutItOrgRT @greggrunberg: TODAY AT 3PM LIVE!!! https://t.co/j9lbSZAsfl" target="_blank">https://t.co/j9lbSZAsfl
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@TalkAboutItOrgMondays… ugh, can be so stressful. What do you do to help minimize stress? Fresh air and a quick walk always helps. Let’s share tips.
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@TalkAboutItOrg@BrainAblaze @roslyn_nicole Thank you! As are you… it’s an honor to serve such an amazing and deserving community.
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@TalkAboutItOrgCODA!!
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@TalkAboutItOrg@roslyn_nicole @BrainAblaze Thank you!
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@TalkAboutItOrgHuge congratulations to Troy Kotsur. His acceptance speech was so powerful. A great moment for the disability community. https://t.co/iU9Xte1LEu
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@TalkAboutItOrg❤️❤️❤️ https://t.co/bWxt4dVjyZ
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@TalkAboutItOrgRT @greggrunberg: At https://t.co/cLA0xUZJBk" target="_blank">https://t.co/cLA0xUZJBk & @TalkAboutItorg EVERY day is #PurpleDay https://t.co/hbpeJiXuur" target="_blank">https://t.co/hbpeJiXuur
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@TalkAboutItOrgSo excited for this! Under the Lights is an amazing short film! https://t.co/ICsy3IKJfF
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@TalkAboutItOrgWho is your #epilepsy hero?
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@TalkAboutItOrg#HappyPurpleDay! But as we encourage to all — every day needs to be a purple day. #EpilepsyAwareness
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@TalkAboutItOrgThank you to former Madison, Wisconsin TV anchor @newssarah76 for talking so passionately about #epilepsy. Ten years after an on-air #seizure, she continually helps attack stigma. https://t.co/bi0jbD3xnd
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@TalkAboutItOrgRT @greggrunberg: THIS. IS. EVERYTHING !https://t.co/CNw0hQjbGd" target="_blank">https://t.co/CNw0hQjbGd
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@TalkAboutItOrgRT @greggrunberg: Our son Jake is amazing. Has a great job at a production company and is a second-degree black belt. Oh and ladies, he’s single! https://t.co/nrJH4iE99W https://t.co/te29enRvsx
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@TalkAboutItOrgToday is #NationalPuppyDay. We hear lots of stories about pups who live with seizures but are getting great care from their amazing humans. So, here’s to all the amazing pups out there.
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@TalkAboutItOrgSome great insightful comments on names and why they are used. As we know, names have power. Using words that can help take the edge off what is happening in a #seizure without ignoring importance of aid, care and treatment can be valuable. Keep the comments coming. Thanks!
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@TalkAboutItOrgThere have been lots of different names used for #seizures — such as fits or spells. We also know some folks name their seizures to make them less clinical sounding. Have you any naming stories?
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@TalkAboutItOrgRT @omar_danoun: Intense #Anxiety can be a #Seizure in #Epilepsy... It usually progress to other symptoms like pausing. #EpilepsyAwareness #NeuroTuber #NeuroTwitter https://t.co/wpBVcrurFg
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@TalkAboutItOrg@Cappel4M Understandable reaction from your husband.
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@TalkAboutItOrgRT @TiffanyKairos: A lot of disabilities are invisible. Your reaction to them isn't.
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@TalkAboutItOrgNew science and new hope for our military heroes who have suffered from traumatic brain injury (TBI) and post-traumatic #epilepsy. https://t.co/PdjaRYQ1c9
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@TalkAboutItOrg@Cklingmn_2697 Awesome news…. And awesome hashtag!
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@TalkAboutItOrgWho was the first person outside your family that you told about your seizures? Was it your best friend? Teacher? Colleague? Date?
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@TalkAboutItOrgRT @greggrunberg: My son’s medications WITH insurance are $$$$$! We’re doing an episode on navigating insurance, pharmacies, generic vs name brand, etc on my podcast TALK ABOUT IT https://t.co/oEA2EuFbGw
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@TalkAboutItOrg@carrie_mosher There sure is. But we are all coming together to change that.
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@TalkAboutItOrg@LeghornFh Siblings…
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@TalkAboutItOrg@LeghornFh Yikes! That’s quite a question. Amazing what people don’t know. That’s why we are all here helping each other. I am sure you straightened out their thinking. Thanks for sharing.
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@TalkAboutItOrg@DCClifford Wow…. Just wow. How did that conversation go? I hope the university-educated person realized they had a lot to learn.
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@TalkAboutItOrg@annavkraft Very true. And thank you for sharing. Do relatives get the answer once you explain it then? Or are they stubborn about understanding?
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@TalkAboutItOrgWhat's the most surprising question you have ever been asked about your or your loved one's #seizures?
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@TalkAboutItOrgThank you, @CodyBrundage185, for talking about #epilepsy on behalf of your daughter, and the entire epilepsy community, after your big win this weekend! And thank you to the @ufc for creating your amazing purple armband and being so supportive, too! https://t.co/ZCSSWLkXRE
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@TalkAboutItOrgToday, on the first day of International #BrainAwarenessWeek, here is @drdrew on why it is so important to talk about #epilepsy and #seizures. https://t.co/WXikg4eSrk
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@TalkAboutItOrgIt’s #NationalNappingDay, but for those with #Epilepsy a nap can be essential. Do you find it helpful? Let’s #TalkAboutIt 5 reasons you should take a nap https://t.co/rrdcNB2afY
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@TalkAboutItOrgLearning seizure first aid could not only save your life but the life of someone you love. https://t.co/pPNLTQ2Diz https://t.co/nZIf4GTuME
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@TalkAboutItOrgRT @BrainAblaze: Most people think all people with #Epilepsy have #seizures that include falling and convulsions. There are multiple types of seizures. This checklist does a great job describing some of the things our bodies may do during a seizure. #EpilepsyAwareness https://t.co/yvej2vgwmX
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@TalkAboutItOrgHow great is THIS?! https://t.co/lLZZpLXV9d
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@TalkAboutItOrgRT @greggrunberg: That people think they know everything about seizures and epilepsy meanwhile they don’t know shit. Educate yourself. Visit: https://t.co/cLA0xUZJBk https://t.co/Jd51s7fKqZ
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@TalkAboutItOrgGreat Interview with @greggrunberg on his family's history with #epilepsy and #seizures -- and our origin story at Talk About It. Thanks to @BrianAltounian and @iamshawnfrancis for their amazing JUST TWO DADS podcast -- available everywhere. https://t.co/T5f5mASLOe
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@TalkAboutItOrgAbout 250,000 people in Ukraine have #epilepsy. Anti-seizure meds are running low. The war is having devastating impact. We salute the work of @ilaeweb & @ibesocialmedia for all they are doing to help. https://t.co/wCNmHM8rNy #IStandWithUkraine️
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@TalkAboutItOrgToday, #InternationalWomensDay, we salute and give deepest love and thanks to every mom, sister, daughter, wife, aunt, friend, etc. … You who help make life worth living. You are pillars of strength and role models for us all.
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@TalkAboutItOrgYoga? Music therapy? Can they dramatically help with #seizures? The @ClevelandClinic is aiming to find out… https://t.co/IRWVItipou
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@TalkAboutItOrgRT @greggrunberg: See you SUNDAY MORNING @RoseBowlStadium #RoseBowl #EpilepsyWalkLA #EpilepsyLosAngeles https://t.co/t3cJ6d1wxc" target="_blank">https://t.co/t3cJ6d1wxc
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@TalkAboutItOrgCan you have #epilepsy if you have #autism? What you need to know.... https://t.co/aF544qiZ6Z
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@TalkAboutItOrgVR and video games to help teens living with #seizures? Awesome! https://t.co/jvWwvQqOcY
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@TalkAboutItOrgTERMS MATTER: “Special Needs” “Handicapped” “Disabled” “Challenged”What do you prefer? Why? What offends you? Why?
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@TalkAboutItOrgFamous abolitionist and women's rights icon #HarrietTubman suffered from temporal lobe #epilepsy as a result of an injury when she was 12. DON'T EVER SAY someone living with #seizures can't accomplish great things. EVER. #WomensHistoryMonth https://t.co/9iBboEXAdS
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@TalkAboutItOrgIt’s #EpilepsyAwarenessMonth in Canada. Thank you @LorrieForseth for your voice… and to all our Canadian followers and friends for talking about it! https://t.co/W364okCtoL
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@TalkAboutItOrg@LorrieForseth @greggrunberg @jsirven Yes. We will put that on our list to talk about!
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@TalkAboutItOrgTime for @greggrunberg to put YOUR toughest #epilepsy and #seizures questions to one of the nicest guys out there -- Dr. Joe Sirven (@jsirven). Available now wherever you grab your podcasts and at https://t.co/4trDMw0y56. https://t.co/ZiGbc0K8w4
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@TalkAboutItOrgRT @BrainAblaze: With an estimated 65 million people worldwide, #Epilepsy is not rare, but types of epilepsy like Dravet Syndrome and Lennox-Gastaut Syndrome (or LGS) are. #RareDiseaseDay #EpilepsyAwareness
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@TalkAboutItOrg#RareDiseaseDay is a Global Event. We all need to pay attention. https://t.co/oYf2SOk63S
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@TalkAboutItOrgRare Diseases A to Z ... 7,000 of them! Hey, @US_FDA! Many of these do not have drugs approved by you. What's up with that? #RareDiseaseDay https://t.co/DkgUOkzCaz
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@TalkAboutItOrgToday is #RareDiseaseDay.... Many types of #epilepsy are rare. Here's a shoutout to our friends @RareEpilepsy, who help make a difference by focusing on clinical trials and research. Have you looked into clinical trials? https://t.co/zqEwlnSwgU
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@TalkAboutItOrgRT @TheNotoriousEEG: Spread the word 🗣 #RareDiseaseDay https://t.co/4QrQ9uDkNm" target="_blank">https://t.co/4QrQ9uDkNm
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@TalkAboutItOrgToday is #RareDiseaseDay Thank you to the National Organization for Rare Disorders (NORD) @RareDiseases for supporting over 25 million Americans living with 7,000 rare diseases. https://t.co/YLKS406IhG
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@TalkAboutItOrg@BrainAblaze @greggrunberg So true. Like our followers… doing great things!
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@TalkAboutItOrg@JJapgar Excellent advice! Thanks for sharing.
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@TalkAboutItOrg@Jillyjigs306 How long have you had it? Did you get it through your doctor?
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@TalkAboutItOrgWe stand in solidarity for the people of a democratic and free #Ukriane.
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@TalkAboutItOrg@Jillyjigs306 We love everything @empatica does with their devices. Super impressive!
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@TalkAboutItOrgRT @greggrunberg: NOW OUT: #TheCareGiverSeries on YouTube / https://t.co/cLA0xUZJBk" target="_blank">https://t.co/cLA0xUZJBk / Podcast: TALK ABOUT IT! https://t.co/sNvJyx6imG" target="_blank">https://t.co/sNvJyx6imG
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@TalkAboutItOrgTake a few moments as we head into the weekend to relax and listen to some cool Hollywood folks talk about #epilepsy and #seizures. https://t.co/kbDeVwmD8G
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@TalkAboutItOrgRT @TalkAboutItorg: New Jersey & Kentucky have new legislation. The Seizure Safe Signage bill requires all businesses to post #SeizureFirstAid signs in areas visible to employees & general public. Congrats to the team interviewed in our TALK ABOUT IT pod available everywhere. https://t.co/NbHmKtbPOr https://t.co/IYECSXUact
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@TalkAboutItOrgIn honor of Two's Day (2/22/22), what are two of your favorite things? Two of ours: old classic cars and new amazing ideas.
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@TalkAboutItOrgNew Jersey & Kentucky have new legislation. The Seizure Safe Signage bill requires all businesses to post #SeizureFirstAid signs in areas visible to employees & general public. Congrats to the team interviewed in our TALK ABOUT IT pod available everywhere. https://t.co/NbHmKtbPOr https://t.co/IYECSXUact
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@TalkAboutItOrgThis…. And also https://t.co/s6fnJnVPGy — Very important to know these basic steps to help potentially save lives. Thanks! https://t.co/dcOBpNcmEX
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@TalkAboutItOrgThis is a great organization … based on an amazing city and doing fantastic #epilepsy, #seizure and #SUDEP awareness and research nationwide. If you want to run the @ChiMarathon for a great cause, here you go…. https://t.co/gYBuRl0ZdP
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@TalkAboutItOrgExciting news from our friends @nyulangone & @NIH. The medical center has been given a grant to develop an implantable monitoring device to collect previously unobtainable data on how the brain behaves moments before and during a #seizure. https://t.co/UUFL939uUf. #epilepsy
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@TalkAboutItOrg@GuyWithEpilepsy @abilitymag @greggrunberg @starwars @HonTonyCoelho @RickYaeger @EpilepsyFdnLA @Comic_Con @NY_Comic_Con @ThatKevinSmith @CharlieFndation Great to hear!
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@TalkAboutItOrgHere’s why we do what we do. Read this fun and informative conversation with the guy who started it all: @greggrunberg. Thank you, @abilitymag! https://t.co/nc6dqKyEeM
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@TalkAboutItOrgWe have some amazing new episodes of our podcast you won't want to miss coming soon... with very special guests. Catch up now wherever you grab your podcasts and at https://t.co/NbHmKtbPOr In the meantime, let us know what topics you want to see covered in future episodes...
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@TalkAboutItOrgYesterday’s #EpilepsyDay reminded us again just how strong, compassionate and caring our community can be — especially when coming together to help and support others. We are proud to know you and to stand with you. https://t.co/pPNLTPL2r1.
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@TalkAboutItOrg#EpilepsyDay is coming to an end. But for us, every day is epilepsy day. We are privileged to work closely with everyone in the community throughout the year. https://t.co/pPNLTPL2r1
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@TalkAboutItOrgRT @greggrunberg: Thanks again @LisaKudrow #InternationalEpilepsyDay https://t.co/yNmfsZcy45" target="_blank">https://t.co/yNmfsZcy45
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@TalkAboutItOrgHey... its @EthanSuplee and @greggrunberg. Doesn't get better than that! TALK ABOUT IT podcast is available everywhere including https://t.co/NbHmKtbPOr #EpilepsyDay https://t.co/Zdbt1KMOMs
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@TalkAboutItOrg❤️ THIS! https://t.co/d27PFGJenB
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@TalkAboutItOrgRT @greggrunberg: Show some ❤️ and RT to ALL on this #EpilepsyDay! https://t.co/tucx8jFlQ3" target="_blank">https://t.co/tucx8jFlQ3
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@TalkAboutItOrgEpilepsy and its stigma impacts people around the world. On this International #EpilepsyDay, we share this powerful story from Doctors without Borders (@MSF_USA) in Liberia. https://t.co/WTO15kzi3y
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@TalkAboutItOrgA group of amazing families have come together to help create Seizure Smart Schools around the USA. Hear their story and how you can help on our podcast, available everywhere and at https://t.co/NbHmKtbPOr #EpilepsyDay https://t.co/gTd0aJRy1E
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@TalkAboutItOrgOur friends at @epilepsyaction have some fascinating information about why St. Valentine is the patron saint of #epilepsy. We wish you a very Happy Valentine's Day. Remember to tell all of the special people in your lives how much they mean to you. https://t.co/HGCYvWmYUX
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@TalkAboutItOrgTwo amazing #epilepsy advocates, @djhapa and @greggrunberg, share their inspirational and motivational stories on our podcast series. Find this episode and all our podcasts at https://t.co/NbHmKtbPOr #EpilepsyDay https://t.co/kf4wXi2XYN
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@TalkAboutItOrgToday is International #EpilepsyDay. Here Iliya Fakour Rashid, a teenager from Iran, tells us how epilepsy has affected his life, and how learning to understand the disease has helped him think of it as a friend. https://t.co/y0HCP4dM9k
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@TalkAboutItOrgLots of us are watching football today, so we thought it would be good to share some wisdom from our good friend @MiloVentimiglia on playing sports (and also some key words on fighting bullying, too). #SuperBowl https://t.co/NMWxDx13MV
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@TalkAboutItOrgAs we approach International #EpilepsyDay on Monday, we wanted to share this advice from the great Jane Seymour OBE -- Dr. Quinn herself (or for all of us James Bond @007 fans, Solitaire). https://t.co/KMDzNWvIJr https://t.co/chVWzKBMJQ
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@TalkAboutItOrgGlobal stories this weekend before International #EpilepsyDay on Monday. Scarlett Paige from Australia talks about the stigma around #epilepsy and #seizures -- including misconceptions about not being able to work. https://t.co/J3R3fzo3T1
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@TalkAboutItOrgSharing more stories from around the world as we approach #EpilepsyDay. Lorraine Lally from @epilepsyireland and the International Bureau for Epilepsy Youth Team talks about women and #epilepsy, including hormonal issues while living with #seizures. https://t.co/LINJ19iUMH
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@TalkAboutItOrgSharing stories from around the world as we approach #EpilepsyDay on Monday. Nina Mago from Uganda talks about the impact of #Epilepsy's stigma on her life, in her country, and around the world. All the more reason for everyone to talk about it! https://t.co/vioSHerV1q
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@TalkAboutItOrgMonday is #EpilepsyDay. We start the weekend by asking an important question with our friends @ChrisGorham and @jsirven: Who has #epilepsy and #seizures? https://t.co/slXYXnf4I3
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@TalkAboutItOrgOur friend @bobsaget died tragically of head trauma. He went to bed after hitting his head and never woke up. Please watch Dr. Gupta explains what to do if you sustain a serious head injury. #TalkAboutIt https://t.co/WRq4idoLmp
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@TalkAboutItOrgEver wonder what happens when @kevinpollak and @greggrunberg get together for an afternoon? https://t.co/pPNLTPL2r1 https://t.co/Gy6MYhXLlN
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@TalkAboutItOrg@staytrueking Amazing advice. Thank you. And yes. Each day is different just as each diagnosis is different. Another word here then is ‘complicated.’
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@TalkAboutItOrgQUESTION: When is the right time to discuss your #seizure disorder with a potential mate? First date? Wait a while?
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@TalkAboutItOrg@SukieKoluki Excellent. And yes. So much bravery throughout the community. Thank you.
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@TalkAboutItOrgRT @greggrunberg: Congresswoman Lizzie Fletcher Nominates Dr. Peter Hotez and Dr. Maria Elena Bottazzi for Nobel Peace Prize CONGRATS to my pal @PeterHotez !!!! Well deserved! https://t.co/j4WoT5piNL
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@TalkAboutItOrg@StevenDorsher Very well said.
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@TalkAboutItOrg@LightningMonk Thank you for the kind words. We appreciate you … and everyone in the community. We lift each other up.
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@TalkAboutItOrg@LightningMonk Great word. Important word. Thank you!
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@TalkAboutItOrg@itsyahgirkiana Fantastic word. And yes!
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@TalkAboutItOrgThinking of words that inspire and remind us of the #epilepsy community as a whole. Here’s one of many: Resilience. What’s a word you would add?
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@TalkAboutItOrgRT @greggrunberg: In episode 1 of #TheCareGiverSeries, I meet Jon, whose son lives with #epilepsy. Besides being supremely cool dads, Jon and I also bonded over the hardships, victories, and hopes that come with being a caregiver. Watch here: https://t.co/1E37nyksNH #sponsored by @JazzPharma https://t.co/oFNiymfr1V
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@TalkAboutItOrgRT @greggrunberg: Of all the amazing shows I’ve starred in, my newest show – #TheCareGiverSeries – is the one I’m most proud of. Link coming TOMORROW! https://t.co/BewDBNlvyv
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@TalkAboutItOrgRT @greggrunberg: We are on our way. Thank you for those who have jumped in. Please keep the support coming. Join team #TalkAboutIt. Walk with us. Or donate in support. THANK YOU! https://t.co/gQ8hlvlNK0
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@TalkAboutItOrgWhat’s the best advice you have ever received?
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@TalkAboutItOrgThank you, Greg. We plan to be doing more of these soon with you and other heroes https://t.co/CiBP9Wawan
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@TalkAboutItOrgRT @greggrunberg: #ICYMI we had an amazing conversation about #seizures and #epilepsy. You can listen to it here. Or look for clips of it on my podcast “Talk About It“ https://t.co/ARucWIcP9t
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@TalkAboutItOrgRT @greggrunberg: Thinking about starting a #TwitterSpaces in a bit to discuss post #seizure effects on the body like ringing in the ears, exhaustion, dizziness, etc. Who want to jump in?
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@TalkAboutItOrgRT @AmericaEpilepsy: Learn more about Seizure Safe School legislation across the country on the latest Talk About It Podcast with Greg Grunberg. https://t.co/hbxCM6E8eY https://t.co/goR2bOQoqn
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@TalkAboutItOrgRT @greggrunberg: https://t.co/qXGY8gGm0C" target="_blank">https://t.co/qXGY8gGm0C
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@TalkAboutItOrgRT @greggrunberg: Once again Dr. Joe Sirven @jsirven absolutely crushed this interview for our podcast “Talk About It“. Thank you for your wealth of knowledge & for communicating things in a way we can all understand. Catch up now and look for Joe’s ep. coming soon! https://t.co/pJbyndTecc
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@TalkAboutItOrgRT @greggrunberg: If you could ask one of the top doctors in the world of neurology and seizure disorders 1 question, what would it be? About to record a new episode of my podcast ‘TALK ABOUT IT’ with very special guest @jsirven REPLY with your question NOW!
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@TalkAboutItOrgNews: A brain implant that helps control severe epilepsy in adults may do the same for children who suffer from unrelenting seizures, new research suggests. https://t.co/EtdlDSBPPZ
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@TalkAboutItOrgWe hear many different and important answers to this question, curious about your answer: In your opinion, what's the most important thing someone should know about living with #seizures?
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@TalkAboutItOrgRT @greggrunberg: Follow @TalkAboutItorg https://t.co/Yy7k3qHKwN" target="_blank">https://t.co/Yy7k3qHKwN
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@TalkAboutItOrg#GetBOOSTED! It can save your life! Boosters provide the best protection against Omicron variant, large CDC studies show https://t.co/fk23aGCLBY
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@TalkAboutItOrgRT @greggrunberg: MUST SEE NEW SHOW!#AsWeSeeIt Watch THIS Trailer https://t.co/vZd7j6ZN4Z" target="_blank">https://t.co/vZd7j6ZN4Z
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@TalkAboutItOrgRT @TalkAboutItorg: OUT NOW! NEW EPISODE! https://t.co/MXY1PEinjV" target="_blank">https://t.co/MXY1PEinjV
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@TalkAboutItOrgOUT NOW! NEW EPISODE! https://t.co/MXY1PEinjV
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@TalkAboutItOrgAlready taking #CBD for #seizures? How have you reacted to COVID? https://t.co/QKJiKvRuLb
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@TalkAboutItOrg“If you can’t fly then run, if you can’t run then walk, if you can’t walk then crawl, but whatever you do you have to keep moving forward.” - Martin Luther King, Jr
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@TalkAboutItOrgTalking about how wonderful @TomBrady is today!!! https://t.co/MlPhjpEk8y
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@TalkAboutItOrgRT @BrainAblaze: Uploading a video of a person having a #seizure without their explicit consent is never OK. #EpilepsyAwareness
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@TalkAboutItOrg@iamnoone1518 In some cases it’s very realistic to think that. Diligence and vigilance is always needed to maintain Seizure freedom.
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@TalkAboutItOrgHow does it really make you feel when people use the term “seizure free?”
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@TalkAboutItOrgFantastic! https://t.co/oogbVv9Tm6
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@TalkAboutItOrgDONATE BLOOD if you can. https://t.co/IPoVqRLp7e
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@TalkAboutItOrgHUGE congrats to our pal and supporter @MiloVentimiglia on his well-deserved star on the #HollywoodWalkOfFame https://t.co/ieZxwWma0O
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@TalkAboutItOrgSharing a favorite quote: “Promise me you’ll always remember: You’re braver than you believe, and stronger than you seem, and smarter than you think.” ...From Winnie-the-Pooh author A.A. Milne.
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@TalkAboutItOrgRT @greggrunberg: “We cannot cure the world of sorrows, but we can choose to live in joy” - Joseph Campbell
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@TalkAboutItOrgRT @Kellie_Martin: Good morning 🌞 I see you doing the very best you can. Thank you!
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@TalkAboutItOrgThere is too much ignorance in the world. We are going to work together, all of us, to end it -- especially around chronic conditions like #epilepsy. A good example of where ignorance must end: seizure recognition and knowing proper first aid. https://t.co/s6fnJnVPGy. RT
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@TalkAboutItOrg@DCClifford @judeaa @BrainAblaze Thank you, we agree... talking is a key first step to action and to change.
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@TalkAboutItOrgThe story of a pig, Cronutt the sea lion, and a potential new treatment for #epilepsy. https://t.co/88uupIK2gU
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@TalkAboutItOrgHuge well-deserved congrats to our friend and American hero @PeterHotez !!! Thank you for ALL that you do. https://t.co/TpFh5lT975
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@TalkAboutItOrgWe know far too many people who have settled for #seizures. Don't do that! Not acceptable! There are many options, more all the time. If you had a friend who was ready to give in, we bet you would push them to never give up. That's what we are going to do, too. Keep going!
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@TalkAboutItOrgWe can #TalkAboutIt… BUT, if the SCIENCE, this story of 65 days in a coma, and the 5,464,223 people that have DIED from COVID-19 doesn’t convince you to GET VACCINATED, good luck to you. https://t.co/L8gvJYi7sa
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@TalkAboutItOrgIt’s all about CONTROL in #2022. You can’t control the stupidity and ignorance of others. But you CAN control how good YOU are to yourself. #TalkAboutIt
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@TalkAboutItOrgSo right. If you have to use a seizure or epilepsy to make a joke then maybe you’re not that funny in the first place. #BeSmarter https://t.co/ofxSYFm5to
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@TalkAboutItOrgAs we begin this new year, we commit to talking more about #epilepsy and other chronic conditions ... to help raise awareness and improve public education about the importance of finding the right treatments and striving for living lives to the fullest. Thank you joining us.
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@TalkAboutItOrgWishing everyone a safe, happy, healthy new year... For all of us!
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@TalkAboutItOrgRT @greggrunberg: More JOY. More LOVE. More LAUGHTER. Let’s all #BeLikeBetty in #2022 RT https://t.co/dqDfutu2cl" target="_blank">https://t.co/dqDfutu2cl
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@TalkAboutItOrg2021: This was a rough year. But let’s close it out with some joy. Let’s each pick 5 random names from our contacts list and let them know we are thinking about them and hope to connect more in 2022. We will create smiles and remind ourselves and others that none of us are alone.
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@TalkAboutItOrgIt’s going to get better. Hang in there. You’re not alone. https://t.co/gZr2c9CxJE
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@TalkAboutItOrgSome of the greatest people we have ever met live with a chronic condition. Their strength of character and their perseverance are inspirations every single day.
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@TalkAboutItOrgPlease make sure you have someone to talk to about your #epilepsy — someone you trust when you need to talk. This is also true for #caregivers. Please make sure you have a trusted friend or fellow caregiver you can talk to about it. You are not alone. None of us are alone.
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@TalkAboutItOrg@gwencrutt @disney__tasthic Usually seizure impact from photosensitive epilepsy occurs at the time of the trigger. Although a headache or other lingering aspects can go longer or be after the initial triggering circumstance.
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@TalkAboutItOrgIf you have seizures, don’t look back… keep moving forward. Step by step. You have allies. You have friends. You have options. Science is always learning more. Talk to your health care team. Turn any despair into hope. Always hope. And action. We stand with you.
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@TalkAboutItOrgAll we want for Christmas is for everyone to be safe, happy and healthy. So thankful for all of us coming together to help support and encourage each other to reach our fullest potential. Thank you for being a part of our family. Have a merry, joyous holiday!
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@TalkAboutItOrgMake sure you have everything you need for holiday travel and for being with family and friends. Make a list and check it twice. Meds? Masks? Good cheer? Fun gifts? Your sense of humor? Enjoy the holidays everyone!!
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@TalkAboutItOrgWe are all seeing the latest news about the COVID surges. Thought it would be a good time to share this recent article. Remember: Get vaccinated! Get boosted! https://t.co/LPDwwPtDlp
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@TalkAboutItOrghttps://t.co/pPNLTQ2Diz has great first aid videos as well. https://t.co/sL1MXYdEyz
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@TalkAboutItOrgJust let them know you’ve got their back. They’re not alone in this. https://t.co/qecblJTdBZ
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@TalkAboutItOrgRT @disney__tasthic: Warning: There’s a lot of flashback lights in Spider-Man No Way Home, so if you’re at risk of seizures there’s a heads up.
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@TalkAboutItOrgMedical marijuana and autism: 'I'm getting my boy back,' mom says https://t.co/6ooPAlA0TQ
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@TalkAboutItOrgRT @greggrunberg: A huge thank you to the uninformed and Ill-advised Anti-Vaxers. No lines at the pharmacy to get a booster. So easy & free. Appreciate it guys.
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@TalkAboutItOrgRT @TimFinnigan12: Honored to be on the @TalkAboutItorg podcast, raising awareness for #Epilepsy ! Thank you @greggrunberg & @klowenberg for having me on! #epilepsyawareness #talkaboutit @EpilepsyFdn https://t.co/tLCStbOGDs
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@TalkAboutItOrgThe Jerk, Blazing Saddles, Airplane, Caddyshack, Bug Ass Spider! https://t.co/YGMsJG06oo
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@TalkAboutItOrgSTAND UP FOR YOURSELF! It’s never as bad as it seems. https://t.co/I1bgKWy7nw
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@TalkAboutItOrg@simon12265 Interesting and understandable comment from your neurologist. Glad the aura warnings help you in that way.
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@TalkAboutItOrg@Wine_Rhine Thank you for sharing. Auras are different for everyone. Glad to hear the auras are properly diagnosed and that yours occur at least some of the time to give you enough warning times.
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@TalkAboutItOrgIn 1999, we met a 12-year-old who had just become the National “Winning Kid” for raising #epilepsy awareness. @TimFinnigan12 has never stopped. Hear his amazing and inspiring story in our latest podcast episode, available everywhere now. https://t.co/WL8pvOaCU1
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@TalkAboutItOrg@ErinZirpolo Thanks for sharing. Amazing health care team at NYU!
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@TalkAboutItOrg@ErinZirpolo Excellent advice! Thank you!
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@TalkAboutItOrg@ErinZirpolo Thank you for sharing your story. Too many people still need to learn what epilepsy is and is not. We appreciate you sharing the bad and the good to give much needed perspective. We have lots more to do.
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@TalkAboutItOrg@ErinZirpolo So glad the magnet helps.
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@TalkAboutItOrgIt would be great if everyone could get a warning right before they have a #seizure. But it doesn’t happen all the time. And it doesn’t happen to a lot of people. Do you get a warning? Do you feel an aura? That feeling in your stomach right before it happens?
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@TalkAboutItOrgSpicy food? Lack of sleep? Paying rent? Finding a date? Losing weight? Stress? Fatigue? Everyone has different triggers that can bring about a #seizure. What are some of yours? https://t.co/og3etO9ffE
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@TalkAboutItOrgHolidays, YAY! Holidays, STRESS! Can’t have one without the other it seems. Sometimes the best gifts we get and give are ones we give ourselves. Not driving yourself nuts sounds like a GREAT gift! Especially if stress is one of your #seizure triggers. Be naughty not nice. Relax!
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@TalkAboutItOrgYou’re not a kid anymore. It’s time to put on your big pants and get a real adult doctor. What are you gonna do? Who are you going to see? How do you find the best adult doc for YOU? First of all, read what these guys have to say: https://t.co/Kzq8eSApuQ
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@TalkAboutItOrgTransitioning from pediatrics to adult care can be tricky, regardless of the health condition. It’s important to build a plan well before that time comes. Here are some resources that can help! https://t.co/Kzq8eSApuQ
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@TalkAboutItOrgTeachers are heroes. But they are overwhelmed and overworked When one of their students has a disability it can just multiply that exponentially. What’s been your experience with teachers understanding your #Epilepsy and or disability?
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@TalkAboutItOrgCollege is hard enough- living away from home can be a challenge for people living with #epilepsy. What do you do to keep yourself safe and how do you talk about it with others?
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@TalkAboutItOrgThe world of #Epilepsy is changing all the time. New medicines, new therapies, new knowledge of just how the brain works. When you hear about something new do you talk about it with your doctor? Do you have that kind of relationship with your health care team?
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@TalkAboutItOrgSelf-driving cars… will they be a game changer for people with #epilepsy and other disabilities? https://t.co/iL5PGKuo7F
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@TalkAboutItOrgOur hearts and our prayers go out to the family, friends, and fans of Demaryius Thomas.
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@TalkAboutItOrgInspirational stories from amazing people. Make sure you take some time to listen… the power of the human spirit is in every episode. #EpilepsyAwareness https://t.co/dwabBf8S0z
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@TalkAboutItOrgNews: Research reveals a common cause for seizures and memory problems in epilepsy. https://t.co/4ybwHxDsrC
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@TalkAboutItOrgThere are many types of #seizures besides the one most people think about — falling and convulsing. Here is a link from our friends at the CDC about seizure types. Do you have a story to share about explaining seizures or #epilepsy to friends or family? https://t.co/GMIrQUBvgJ
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@TalkAboutItOrg.@klowenberg here: I rewatched a fun film this weekend — Galaxy Quest. The movie’s catch phrase reminded me of many of my amazing friends in the #epilepsy community: “Never Give Up! Never Surrender!” If you are still having seizures, please keep seeking new therapy options!
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@TalkAboutItOrgRT @AmyLeeEV: Donate to @EpilepsyFdn to help those diagnosed to overcome the challenges of living with epilepsy. I’ve partnered with @winwithfandiem & @Bandsintown to offer one bidder my signed Roland stage keyboard 🎹 alongside a personalized message! #GivingTuesday https://t.co/Ssl3j8E4wo https://t.co/jzSVFoJY2x
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@TalkAboutItOrgCongratulations to Gardiner Lapham for receiving this well-deserved award @AmEpilepsySoc. Her leadership (along with all the leaders at @DannyDidOrg) are helping change the world for everyone living with epilepsy — and honoring families of those who have lost loved ones to #SUDEP https://t.co/5pig58t63P
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@TalkAboutItOrgAs we are now full swing on the holiday shopping and party season, (sometimes called the ‘silly season’), please keep in mind any of your seizure triggers. Here’s some advice with a little help from our buddy @SeanHayes. https://t.co/og3etO9ffE
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@TalkAboutItOrg@Mike_Wuerthele Thank you for sharing.
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@TalkAboutItOrg@CaerwynFarm Thank you for sharing. We are so sorry for your friend’s loss.
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@TalkAboutItOrgThis is Infantile Spasms Awareness Week (Dec. 1-7). Infantile spasms (also called IS) are also known as West syndrome. These seizures may be subtle and confused with other normal baby behaviors or colic. Diagnosing IS early is crucial! To learn more, visit https://t.co/W9qX4vkYjn
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@TalkAboutItOrgWe add our voice to the global support for #WorldAIDSDay, with this year's theme of "Ending the HIV Epidemic: Equitable Access, Everyone’s Voice." To learn more, and how you can help raise your voice, please visit https://t.co/PVkqSQFsV9
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@TalkAboutItOrg@ruby73667817 Hi Ruby. Please send us a DM and we can look at finding your specific resources in your area.
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@TalkAboutItOrgOn this last day of #EpilepsyAwarenessMonth 2021, we rededicate ourselves year-round to talking about epilepsy, raising awareness, and improving education about epilepsy and seizures. Thank you for also raising your voices to help your loved ones and all who live with #epilepsy.
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@TalkAboutItOrg@BrainAblaze Thank you for all you do to help the community!
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@TalkAboutItOrgAs we get closer to the end of #EpilepsyAwarenessMonth, let’s go back to one of our core #epilepsy messages - don’t hesitate to talk about it. Please share your story. Did you ever first hesitate talking to someone, and then were glad you did?
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@TalkAboutItOrg@HadaFeminista I hope those people understand differently soon.
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@TalkAboutItOrgGreat question from @BrainAblaze. Thoughts, dear followers? #EpilepsyAwarenessMonth. https://t.co/dlYVSr4mJ6
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@TalkAboutItOrgOne of the most important tips we hear from #Caregivers is to make sure you take good care of yourself to be at your best to look after others. It’s a great tip! We love hearing from you to help share and strengthen each other and the community. Please keep those tips coming..
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@TalkAboutItOrgTwo of our co-founders are fathers of children living with #epilepsy. So, we know and appreciate the challenges and triumphs of parents of kids with chronic conditions. Here's a link featuring our co-founder @greggrunberg sharing key info for parents. https://t.co/AAV4VyAfNf
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@TalkAboutItOrgSharing more amazing and important comments. #Caregivers, make sure you do what you need to do to take care of yourself, too. We are all only our best when we take the time to rest, recharge, and focus. https://t.co/mjrTcZ1Qix
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@TalkAboutItOrgSharing some amazing comments from #Caregivers. https://t.co/7H8QLaIAcX
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@TalkAboutItOrgVery important question from @greggrunberg. #Caregivers, thoughts on advice and tips? Please share. https://t.co/kWjl1s38y2
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@TalkAboutItOrgWishing everyone a Happy Thanksgiving -- We hope you are finding time with family, with good food, with reflection, and most of all with happiness, and peace. We are so very thankful for all of you! https://t.co/L03zvU5o2i
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@TalkAboutItOrgThis #NationalEpilepsyMonth, we salute amazing organization that help and support the #Epilepsy community. We love our interactions with the professionals at the American Epilepsy Society. If you need to find a epilepsy specialist, check them out: https://t.co/c8IhYd4afz
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@TalkAboutItOrgExcellent story on #epilepsy facts for the more than 400,000 Latinos in the United States living with #epilepsy. The video features Chicago-area resources. https://t.co/wEWkU0Fu5w #EpilepsyAware #EpilepsyAwarenessMonth
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@TalkAboutItOrgLove this story of 11-year-old Anabela, who has not let her #epilepsy stop her from pursuing her fullest potential -- becoming a gymnast. Thank you to Anabela and her family for sharing her amazing story. https://t.co/uf7JusrmEq #EpilepsyAware #EpilepsyAwarenessMonth
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@TalkAboutItOrgIf you are getting on the road this week to travel over the river and through the woods to relatives for Thanksgiving, may we recommend letting @greggrunberg keep you company by catching up on our podcast series. https://t.co/KUwlbzuwXU
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@TalkAboutItOrg@BrainAblaze @StobiesGalaxy @klowenberg @greggrunberg Thank you... as do you. You do amazing work, too.
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@TalkAboutItOrgAs we enter Thanksgiving week, all of us at Talk About It are thankful for the amazing people we meet every day in the #epilepsy community, including parents, caregivers, advocates, and especially people living with epilepsy. Your strength, passion, and dedication are inspiring.
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@TalkAboutItOrgThis #NationalEpilepsyAwarenessMonth, we salute important epilepsy organizations . This write-up on the CDC website about our friends at the Epilepsy Foundation of Central and South Texas @EFCST caught our eye. Amazing people helping a diverse community. https://t.co/eBtczwSLrx
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@TalkAboutItOrgWe are fortunate to have so many amazing #epilepsy advocates and friends following us. Check out our followers list. Find new new friends, too. We encourage all of you to talk about it more together, always, but especially during #NationalEpilepsyAwarenessMonth. Thank you!
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@TalkAboutItOrgWe are saluting and recognizing amazing #epilepsy organizations this #NationalEpilepsyAwareness Month. Today, we salute our friends at @CureEpilepsy, and share the latest news from their CEO. Thank you, Cure Epilepsy, for your passion and commitment. https://t.co/vg7SUkes8l
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@TalkAboutItOrgMany people with #epilepsy continue to have seizures even though they are taking medicine. Learn four ways from our friends at the @CDCChronic about how to get better control of epilepsy and seizures. https://t.co/ogvgf3d9a9 #EpilepsyAware #NationalEpilepsyAwarenessMonth'
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@TalkAboutItOrgNEWS: Can #seizures be reliably forecast? A new study says very possibly with wrist-worn devices. #Epilepsy #NationalEpilepsyAwarenessMonth2021 https://t.co/JjQVOEEgsV
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@TalkAboutItOrgToday, and every day, we honor and thank all those who have served to protect and defend our lives and our liberties. #VeteransDay2021
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@TalkAboutItOrgThank you @WhiteHouse for talking about #epilepsy and. #SeizureFirstAid for #NationalEpilepsyAwarenessMonth. https://t.co/QRhXAOzzvp
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@TalkAboutItOrgNEWS: Study shows how #epilepsy and #autism are linked. Questions about these disorders include: Does autism lead to an increase in epilepsy? Or does epilepsy alter the brain circuit, which then leads to autism? https://t.co/hKWM8pN1IN #NationalEpilepsyAwarenessMonth
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@TalkAboutItOrgThis is a tough topic, but a very important one. Not enough is being said about Sudden Unexpected Death in #Epilepsy (SUDEP), not even between health care providers. This story from the @AmerAcadPeds sums up why it matters to talk about it. https://t.co/fHy72m4utB #EpilepsyAware
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@TalkAboutItOrgThe #epilepsy community is strong, resilient and compassionate. Here's another example: Meet Dan. "I will not let epilepsy define me, my career, or my goals in life." https://t.co/bbj3kS0QVn Thank you, Dan (and @EpilepsyRUK), for talking about it! #EpilepsyAware #NEAM2021
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@TalkAboutItOrgNews: A recent study showed the most frequent conditions occurring along with #epilepsy are anxiety and mood disorders, hypertension, back problems, developmental disorders, and headache. https://t.co/ic3l2DkmrA
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@TalkAboutItOrgFootballer star Matt Crooks talks about what it is like to live with #epilepsy. "[Epilepsy] stopping me from becoming a professional footballer was never a thought that ever entered my mind." Thank you, Matt, for talking about it! https://t.co/FaQHPBOwYB #EpilepsyAware
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@TalkAboutItOrgFor National #Epilepsy Awareness Month, we salute organizations doing great work for our community. Today, we recognize the amazing team at https://t.co/0GNnCjsX7V Thank you!! TSC is a leading genetic cause of both epilepsy and autism. #EpilepsyAware #NEAM2021
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@TalkAboutItOrgThe power of football is an amazing thing! Thank you, Paul, and to all your teammates at Braunton FC Inclusion Team, for showing everyone that having #epilepsy and #autism should not stop anyone from reaching toward their fullest potential! https://t.co/hFf9B62Pzp
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@TalkAboutItOrgAbout 1 in 10 people may have a #seizure during their life. Seizures are common. You might need to help someone during or after a seizure. Learn what you can do to keep someone safe until the seizure stops by itself. https://t.co/UqPjtx82rf https://t.co/yod2YJWkNQ #NEAM2021
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@TalkAboutItOrgOn our latest podcast episode, @greggrunberg and his guest talk about challenges and motivations of being a father in a family living with #epilepsy. Don't miss it! Special thanks to @GreenwichBio for sponsoring our podcasts. https://t.co/sjTYmBEJ27 #NEAM2021 #EpilepsyAware
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@TalkAboutItOrgWe salute and recommend amazing organizations this #NationalEpilepsyAwarenessMonth @curedravet Dravet syndrome is a rare form of intractable epilepsy that begins in infancy and significantly impacts people through their lives. https://t.co/ZOaerLbqnd. https://t.co/N9QVX10vgL
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@TalkAboutItOrgSeizure management is key to getting better control of your #epilepsy and your life. Check out this Managing Epilepsy Well checklist from our friends at the CDC. #EpilepsyAware #NationalEpilepsyAwarenessMonth2021 https://t.co/XFDfT9YKsl
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@TalkAboutItOrgAnyone can develop #epilepsy ... regardless of age, race, or gender. Most cases of epilepsy develop in the young and the old... but not always. #EpilepsyAware #NationalEpilepsyAwarenessMonth2021 https://t.co/c1lzTvyHL4
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@TalkAboutItOrgThank you, @GovAndyBeshear, for setting an outstanding example in leadership. Thank you also to the whole team at @efkentuckiana for their amazing work on behalf of everyone living with epilepsy. https://t.co/2MzTsIEZQz
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@TalkAboutItOrgA #seizure is a short change in normal brain activity. Seizures are the main sign of #epilepsy. Some seizures can look like staring spells. Others cause a person to fall, shake, and lose consciousness. #EpilepsyAware #NationalEpilepsyAwarenessMonth2021 https://t.co/xSQBSBlh4j
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@TalkAboutItOrg#Epilepsy -- sometimes called a seizure disorder, -- is a disorder of the brain. A person is diagnosed with epilepsy when they have had two or more seizures. #EpilepsyAware #NationalEpilepsyAwarenessMonth2021 https://t.co/CIiuUjvEBO
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@TalkAboutItOrgOne in 26 people will develop epilepsy in their lifetime. #EpilepsyAware #NationalEpilepsyAwarenessMonth2021 https://t.co/xSQBSBlh4j" target="_blank">https://t.co/xSQBSBlh4j https://t.co/xSQBSBlh4j" target="_blank">https://t.co/xSQBSBlh4j
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@TalkAboutItOrgOn this #LGSAwarenessDay, please check out our deep-dive interview with @LGS_Foundation leader Tracy Dixon-Salazar. She is a mom, advocate, and scientist/researcher on the front lines of new treatment options for this rare #epilepsy. https://t.co/gzmw51lQtJ
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@TalkAboutItOrgToday is #LGSAwarenessDay. Lennox-Gastaut Syndrome is a brain disorder frequently evolved from early-onset epilepsy. Typical brain development is disrupted. Learning will be difficult. Please visit and support our friends at https://t.co/jM3lZPtRyf https://t.co/KsudubGLjp
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@TalkAboutItOrgToday starts National Epilepsy Awareness Month. This is a time to celebrate the bravery, strength, compassion, and resilience of the entire #Epilepsy community. We join with all of you in raising awareness and improving education for the whole world. #EpilepsyAware #NEAM2021
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@TalkAboutItOrgAnother #Halloween tip for parents and caregivers of kids with #epilepsy. If you child is on the #KetogenicDiet, they can still have a great time trick-or-treating -- and choose to donate their candy to good causes. See this article for ideas: https://t.co/kHetVY3bwG
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@TalkAboutItOrgWe love seeing stories like this! Thank you, Evie, for setting an incredible example. DO NOT let #epilepsy (or any health condition) stop you from striving toward your fullest potential. Congrats, Evie, on running your marathon! https://t.co/vcXzO7VunS
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@TalkAboutItOrgNational Epilepsy Awareness Month starts Monday. We'll celebrate the #epilepsy Community's power and strength. We will be sharing tips, facts, resources, and stories all month. We encourage you to share what you want the social-sphere to know about epilepsy, too. #EpilepsyAware
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@TalkAboutItOrgSharing some more #Halloween Tips for parents & caregivers of children with #epilepsy: Make sure your children go out in a friend group that includes someone who knows #SeizureFirstAid. Make sure the friends watch 'Kirk' and 'Spock' talk about it: https://t.co/UqPjtx82rf
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@TalkAboutItOrgParents and caregivers. Please help our good friends at @DannyDidOrg by participating in this survey about helping healthcare providers better talk about #SUDEP. https://t.co/JR58qC0uaF
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@TalkAboutItOrgSharing some #Halloween Tips for parents and caregivers of kids with #epilepsy: Although the temptation will certainly be there, make sure kids don't stay up later than their normal bedtime Sunday night ... especially if stress or sleep is a seizure trigger.
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@TalkAboutItOrgRT @greggrunberg: #Hero @TalkAboutItorg https://t.co/nZyTGXGWTk" target="_blank">https://t.co/nZyTGXGWTk
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@TalkAboutItOrgSharing important #Halloween safety tIps this week for parents and caregivers of children with #epilepsy -- Make sure your child has a teenager or adult with them. If a child has a seizure while trick-or-treating, it might otherwise go unnoticed with all the night's activities.
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@TalkAboutItOrgSharing important #Halloween safety tIps this week for parents and caregivers of children with #epilepsy -- If appropriate, make sure your child has taken their medication Sunday night before they go out Trick or Treating.
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@TalkAboutItOrgThank you @epilepsy_dad for sharing your son's journey to getting a seizure dog... this video really touched our hearts. Listening to your son talk about his new pup, and to see his excitement is just a gift. https://t.co/AeEaCaJcEa
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@TalkAboutItOrgOne very important way to help mitigate risk of Sudden Unexpected Death in Epilepsy (SUDEP) is to make sure you are taking your medications and following your seizure treatment program as prescribed from your health care team #Time2Change #SUDEPActionDay https://t.co/A4UW3op87D
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@TalkAboutItOrgOne way to mitigate the risk of #SUDEP is to understand your seizure triggers and make sure you avoid them. Listen to @GregGrunberg talk to one of our best #epilepsy specialists about it (with an assist from @SeanHayes). #Time2Change #SUDEPActionDay https://t.co/FZjzW1H3R2
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@TalkAboutItOrgToday, on #SUDEP Action Day, we want to make sure you know the ways to mitigate the risks of Sudden Unexpected Death in Epilepsy. #TIme2Change (Thank you @CureEpilepsy and @CDCChronic for the graphic.) https://t.co/r2BFgE3pC6
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@TalkAboutItOrgToday is #SUDEP Action Day. Here are some key risk factors you need to know about Sudden Unexpected Death in Epilepsy. #Time2Change (Thanks to our friends at @CUREepilepsy and @CDCchronic for the graphic) https://t.co/8MzyGxBlzt
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@TalkAboutItOrgToday is #SUDEP Action Day. We proudly join with the mission that it is #Time2Change what people know about SUDEP. To learn more about the day and what you need to know about SUDEP, visit our friends at @CureEpilepsy https://t.co/JPyI5Lp7a9
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@TalkAboutItOrg@Ms_Demeanor77 We are so sorry to hear this. Reggie sounds like an amazing guy. Please let him know that bullies are cowards... and his courage, character and heart will rise up above any bully. Please also share this with Reggie: https://t.co/TRHxr3duV8
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@TalkAboutItOrgWe just recorded a brand new episode of our podcast last night with a group of amazing people. We can't wait for you to hear their stories a bit later this year. In the meantime, catch up on "Talk About It with @greggrunberg" wherever you listen to your podcasts. https://t.co/hGdGYBaQBg
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@TalkAboutItOrgWe applaud tri-athlete Annie Brooks for talking about how she did not let her #epilepsy stop her from reaching her fullest potential. She is a great model for all of us. https://t.co/gbCErbBjne
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@TalkAboutItOrgNews: A new method of targeting the parts of the brain most prone to seizure activity could enable more accurate diagnosis and guide more precision surgical options. https://t.co/YaWMTJ2dN1
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@TalkAboutItOrgThank you @DDawkins66 and the @BuffaloBills for helping this family during a time of great grief and loss. https://t.co/c97moQ5Q0l
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@TalkAboutItOrgThank you to the @DeptVetAffairs for created an #Epilepsy Centers of Excellence, including a collection of on-demand caregiver webinars on topics such as memory, self-management, women’s issues, and types of treatments. https://t.co/LOKNSAw1bo
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@TalkAboutItOrgMozart May Stop Seizures: A new study shows why listening to some pieces by Mozart, namely Piano Sonata in C Major (K545) and Sonata for Two Pianos in D Major (K448), can have anti-seizure properties. https://t.co/C510RMtSHn
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@TalkAboutItOrgCongratulations to @EpilepsyFDN on the second anniversary of their Seizure Safe Schools Initiative. https://t.co/wJIXpEdq2R
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@TalkAboutItOrgHere is an excellent article about how to talk about seizures with children living with #epilepsy: https://t.co/9sxPtmmMJJ
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@TalkAboutItOrg#Epilepsy can be extremely hard to diagnose, which is why it is so important to go to your doctor and let them know if anything is amiss. A women talks about how it took 10 years for a proper diagnosis: https://t.co/CBTgfBAwRY
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@TalkAboutItOrgNew research suggests a natural brain phenomenon could be used as a treatment for #epilepsy. https://t.co/i8D5dKPrFK
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@TalkAboutItOrgWhy are people in Texas painting their pumpkins purple this fall? https://t.co/aGo5Tz7lik
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@TalkAboutItOrgTwo giants of #epilepsy awareness are talking about it in our latest podcast episode. Join @greggrunberg and @djhapa as they share stories of inspiration and spin tales of DJ-ing and music. https://t.co/BhfwTghsHl
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@TalkAboutItOrgWelcome to a new week. As you plan your days, remember to set aside time for yourself. Structured days are sometimes hard to maintain, but we all need time to recharge, especially if we are caregivers.
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@TalkAboutItOrg@QuestionAnders @greggrunberg @talk_company Thank you! Sounds good to us. Let’s chat soon!
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@TalkAboutItOrgEveryone needs to know: Most people with #epilepsy can do the same things as those without epilepsy. Many successful people with epilepsy work in medicine, sports, entertainment, government, and other professions. Always reach for your fullest potential. Please share...
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@TalkAboutItOrgEveryone needs to know: #Epilepsy is common. You likely know someone who has epilepsy, although they may not have told you because of fear from stigma. But they are not alone, about 3.4M Americans live with epilepsy -- more than the population of Delaware, Montana & NH combined
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@TalkAboutItOrgThis looks like it will be an incredible (and important) event from our friends at @CureEpilepsy https://t.co/wZzUvBcpn4
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@TalkAboutItOrgToday we remember the fallen, we salute the heroes, we support those who lost loved ones. We reflect on the world that was before and we dedicate ourselves to every day building a better world for all of us and our posterity. #911Memorial
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@TalkAboutItOrgExcellent resource: https://t.co/Yj0TcgMSpm #NationalSuicidePreventionDay
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@TalkAboutItOrgPeople w chronic health conditions like #epilepsy are more at risk of suicidal thoughts. But any of us can have dark thoughts and contemplations, especially in tough times. If you are in a dark place, call: 1-800-273-TALK (1-800-273-8255) #NationalSuicidePreventionDay
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@TalkAboutItOrgExciting Research News: @NIH has awarded a $12.25 million grant to the University of California San Diego to develop and enhance brain-sensing and brain-stimulating platform technologies to enable treatment of drug-resistant #epilepsy. https://t.co/YiwvLWOS6M
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@TalkAboutItOrgSome parent tips for "back to school:" Make sure your kids have a structured homework schedule; make sure they have a designated homework place; please take time to talk about the day with kids -- including if they had any worries tied to their health. Talk about it... together. https://t.co/DaX5ScBMN1
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@TalkAboutItOrgTune in to our brand new episode of Talk About It with @GregGrunberg. This month, Greg has an important, wide-ranging conversation with actor and weight loss guru @EthanSuplee. Greg and Ethan have advice for all of us... because we all live with something https://t.co/4MoCRhKKkf
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@TalkAboutItOrgWonderful & bittersweet to see @DisneyChannel honor #CameronBoyce’s memory during a Descendants animated movie. We are fortunate to have met Cameron’s amazing family who are sustaining his legacy & raising #SUDEP awareness at https://t.co/XrxcaLIdpc Please consider a donation. https://t.co/3z7GryrvRI
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@TalkAboutItOrgWe are so proud to join Greg in wishing our dear friend and fellow #epilepsy warrior #AanFaneca @afan66 on his induction into the NFL Hall of Fame. Great player. Great champion. Amazing role model! Congratulations, our friend! https://t.co/Af4Qp7faDh
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@TalkAboutItOrgThese kinds of stories absolutely break our heart. Families turn apart because of not getting vaccinated. Please! Please... get your COVID vaccine. It's literally a choice between life and death... for you, and others. Jenny, so sorry for your loss. https://t.co/qeDTaEdzKf
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@TalkAboutItOrgRT @5_News: Epilepsy is a condition which affects the brain, and causes distressing and dangerous seizures. A shocking social media trend has emerged. Now there are calls to make that a specific criminal offence. @CathJacobNews | #5News 🚨 No flashing images shown. https://t.co/fwu32YVY36
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@TalkAboutItOrgThank you for your kind words. So awesome to hear how you love the podcast. We have more episodes on the way. https://t.co/7awjBVTmXU
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@TalkAboutItOrg@LorrieForseth @kaileyh175 @EpilepsyFdn Thank you!! More episodes coming very soon!
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@TalkAboutItOrg.@StarTrek has a maxim: Infinite Diversity in Infinite Combinations (IDIC). In other words, stigmatizing anyone is highly illogical. Below… hear our co-founder @greggrunberg share a quote from Trek creator Gene Roddenberry on what would be his 100th birthday year. https://t.co/fafIGs1DTE
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@TalkAboutItOrgToday is the 31st Anniversary of the #AmericansWithDisabilitiesAct. We are proud to know our good friend @HonTonyCoelho who was a primary author of the ADA. Tony lives with #epilepsy. We look to his example of turning a disability into literally a world changing achievement.
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@TalkAboutItOrgHappy Birthday, #HarrisonFord. You are a class act all the way, and a great friend. Thank you for helping us talk about @epilepsy. https://t.co/P5A4qmrtGK https://t.co/uR0qZaD89A
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@TalkAboutItOrgHappy Birthday, #HarrisonFord. You are a class act all the way, and a great friend. Thank you for helping us talk about @epilepsy. https://t.co/P5A4qmJ55k https://t.co/xz0LxzI0RX
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@TalkAboutItOrgPlease join us in wishing HAPPY BIRTHDAY to our co-founder @greggrunberg! On screen he has worked with the likes of Starfleet Command, the Rebel Alliance, & the CIA. Off screen, he is an amazing friend, father, advocate, spokes person & champion. We are proud he is on our team.
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@TalkAboutItOrgOur thanks to @davidaxelrod and @nytopinion for publishing this important essay. We are very fortunate to have David and his wife Susan as such strong advocates in the #epilepsy and broader disabilities community. @CureEpilepsy https://t.co/7u1wIpRrDR
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@TalkAboutItOrgWishing everyone a safe, happy, joyful July 4th weekend. Many of us will be getting back on the road for the holiday. If you need some amazing, inspiring listening for the drive, we recommend our just released season premiere of our podcast. https://t.co/Q5C9FadLAf
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@TalkAboutItOrgRT @youngepilepsy: We are showing our support to all LGBTQ+ young people out there who are navigating life with epilepsy. Pride month is about living proudly and without fear, and that is something all young people should be able to do! 🏳️🌈 #PrideMonth2021 💜 https://t.co/bVuHS0gy53
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@TalkAboutItOrgOur podcast’s second season premiered today! Check out the amazing heartfelt story of Tracy Dixon-Salazar from @LGS_Foundation! Her powerful conversation with @GregGrunberg will inspire you. Special thanks to our sponsor @GreenwichBio https://t.co/Q5C9FadLAf
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@TalkAboutItOrgNew studies of the Vagus Nerve, which connects the brain to the heart, intestines, and other organs, has led to surprising discoveries about its role in memory & emotion, & can lead to new treatments for conditions from Alzheimer's to PTSD to #epilepsy. https://t.co/Ny3roc5S23
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@TalkAboutItOrgToday, June 23rd, is International #DravetSyndromeAwarenessDay. Dravet Syndrome is a rare form of intractable #epilepsy beginning in infancy and can have significant impacts throughout life. Please learn more and support the great work of our friends at https://t.co/SwOZgICBpS
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@TalkAboutItOrgGood on you, Toby (and family). We love hearing stories like this -- Inspirational and amazing. And just look at that smile! Thank you for talking about the keto diet! Remember, everyone, explore all treatment options. Never settle! https://t.co/NA2pQA1M4i
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@TalkAboutItOrgRT @Dukeneurosurg: Deb Koltai and @Dr_TonyFuller of Duke Global Neurosurgery & Neurology were declared winners of a Shark Tank competition to develop an app for adolescents with #epilepsy in Uganda, focused on self-management and resilience, sponsored by @EpilepsyFdn. @DGNNneuro @Duke_Neurology https://t.co/QuUX9aacAa
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@TalkAboutItOrg.@wired magazine recently talked about how smartphones can help you cope with #epilepsy. Interesting article on self management strategies, seizure diaries, and turning to social media. https://t.co/Zlfm7JtaCy
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@TalkAboutItOrgWe celebrate ending all kinds of stigma! We celebrate brave people willing to talk about it! We salute the Raiders' Carl Nassib for sharing his truth. We also appreciate the Raiders and NFL for standing with Carl. We are proud to stand with him, too. https://t.co/5JEZ94ZALG
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@TalkAboutItOrgCan Mozart's music reduce seizures? New research recently presented at a neurology conference in Europe shows the music of the classical artist -- in particular his Sonata for Two Pianos -- may lead to a possible treatment to prevent seizures. https://t.co/ODtT7uRVDj
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@TalkAboutItOrgIt is finally summer and many of us are getting on the road again for much needed vacations. Here is an important tip if you live with #epilepsy, or any medical condition. Remember to make sure you have enough medication for your trip. Daily or weekly pill cases are a great tool
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@TalkAboutItOrgNow that it is summer and we are all starting to get out and about again, please remember a very important rule if you live with #seizures and are heading to a pool or beach. Always swim with a loved one or friend. Never swim alone. This is also just a good rule for anyone.
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@TalkAboutItOrgKen here from TAI: Spending a day in hospital with a parent having surgery - a strong reminder of families facing down stress & worry with incredible strength & perseverance as loved ones with #epilepsy spend hospital time with diagnosis, testing, and procedures. All heroes!
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@TalkAboutItOrgIt is the UK's National #Epilepsy Week. We salute organizations making a different for people & families living with epilepsy & seizures throughout the United Kingdom. @epilepsyaction @epilepsysociety @EpilepsyRUK @EpilepsyConnexn @SudepAction @youngepilepsy @epilepsy_scot