Kristen Bell
Talks About Epilepsy
Greg Grunberg
Talks About Epilepsy
J.J. Abrams
Talks About Epilepsy
Zachary Quinto
Talks About Epilepsy
John Mayer
Talks About Epilepsy
Roger Cross
Talks About Epilepsy
Hayden Panettiere
Talks About Epilepsy
Milo Ventimiglia
Talks About Epilepsy
Chris Pine
Talks About Epilepsy
Talk About Different Causes
Epilepsy
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The Importance of Epilepsy Research with Zachary Quinto & Steven Schachter, M.D.
Zachary Quinto (IMDB) Greg Grunberg (IMDB) Steve Schachter, M.D. (Profile)
Zachary Quinto talks about epilepsy awareness and the current state of research surrounding the treatment of seizure disorders.
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For the Siblings of People with Epilepsy with Sarah Jane Morris & Brien J. Smith, M.D.
Sarah Jane Morris (IMDB) Greg Grunberg (IMDB) Brien Smith, M.D.
Sarah Jane Morris talks about epilepsy awareness and the issues faced by siblings of those suffering from epilepsy and seizure disorders.
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Telling your Friends You Have Epilepsy with Kristen Bell & Novette Green, R.N.
Kristen Bell (IMDB) Greg Grunberg (IMDB) Dr. Novette Green, DNP, ARNP
Kristen Bell, star of Veronica Mars and Heroes, talks about the importance of letting your best friends know about you epilepsy, especially if you have seizures.
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Wellness with Derek Theler & Patricia Osborne Shafer, RN, MN
Derek Theler (IMDB) Greg Grunberg (IMDB) Patty Shafer, R.N., M.N. (Profile)
Living with seizures can be a challenge, but one way to help is to make sure you are maintaining a healthy lifestyle. This includes exercise, eating right and doing activities to help your relax and reduce stress.
Read more
Morning Glory NYC Premiere
Harrison Ford (IMDB) J.J. Abrams (IMDB) Rachel McAdams (IMDB) Jeff Goldblum (IMDB)
New York City, Sunday November 7, 2010 -- On the red carpet at the premiere of new movie Morning Glory, Harrison Ford, JJ Abrams, Rachel McAdams and Jeff Goldblum talk candidly about what its like to have epilepsy in his family, and his hopes for a cure. Other interviewees featured include co-stars Patrick Wilson, Arden Myrin, J Elaine Marcos, Alice Callahan, Rick Younger, plus singer Natasha Bedingfield (featured song Strip Me from the soundtrack), producer Sherryl Clark, Morning Glory writer Aline Brosh McKenna.
Read moreTeam Behind Talk About It
Greg Grunberg
Ken Lowenberg
Phil Gattone
Thanks to Our Sponsor
Seizures Are Signs is made available by Jazz Pharmaceuticals.
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@TalkAboutItOrgOur latest podcast is out, featuring @drwendymiller -- the Professor who is doing cutting edge research to build a new digital epilepsy library designed to change the world of treatment. Hosted by @greggrunberg #EpilepsyAwareness https://t.co/s7KHSnLcuQ
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@TalkAboutItOrg@iamgothamgirl @tuggerthekink81 You are both true inspirations and absolutely #epilepsy warriors. Thanks for sharing your stories. And thanks for your perseverance and example to others. #EpilepsyAwareness
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@TalkAboutItOrg@sassyseizures Wishing you well and a speedy recovery.
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@TalkAboutItOrgHappy birthday!! And thanks for all you do for #EpilepsyAwareness. Let’s see that purple hair! https://t.co/KZ8zW0D5t1
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@TalkAboutItOrgLove this attitude! https://t.co/Bm9CwIbkiD
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@TalkAboutItOrgWho is a big cheerleader or champion in your life? #EpilepsyAwareness.
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@TalkAboutItOrgAmazing empowering thread below. Margot is adorable. Her family is strong and wonderful. And the researchers and medical teams are to be applauded. Loudly. #NeverSettle. #EpilepsyAwareness. https://t.co/W4OCNtx9e9
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@TalkAboutItOrg@hcmefford @esmatfa We appreciate you both!
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@TalkAboutItOrg@AleRossiNeuro @FiladelfiaGene1 @Vivian_WY_Liao @BeneKassabian @Filadelfia_DK Awesome!
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@TalkAboutItOrgThank you for your work, and for the work of all the future leaders you will help mentor. #EpilepsyAwareness https://t.co/Y4duPgfcQa
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@TalkAboutItOrgExtremely important! Knowing what NOT to do... #EpilepsyAwareness https://t.co/selFfEUGES
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@TalkAboutItOrgRT @TalkAboutItorg: Our hearts weep… thoughts and prayers to Kalani’s family. https://t.co/aJ01qRVkQl" target="_blank">https://t.co/aJ01qRVkQl
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@TalkAboutItOrgOur hearts weep… thoughts and prayers to Kalani’s family. https://t.co/aJ01qRVkQl
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@TalkAboutItOrgCheers to @NASCAR driver #ArmaniWilliams for talking about his #Autism. #Hero https://t.co/GOpdHbBtU3
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@TalkAboutItOrg❤️❤️❤️❤️ https://t.co/G9WzcSUyCi
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@TalkAboutItOrgWe were so excited to have you join us, @gabrielleruiz! Thank you for helping raise #EpilepsyAwareness https://t.co/G9WzcSUyCi
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@TalkAboutItOrgRT @greggrunberg: Great great day shooting #Epilepsy educational videos & PSAs for @TalkAboutItorg & Others. HUGE THANK YOU @BrentSpiner @captdope @gabrielleruiz @PearceJoza - so many more to come! https://t.co/uzRHODUlWI
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@TalkAboutItOrgWhat’s the most important fact you want someone to know about #epilepsy and seizures? #EpilepsyAwareness
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@TalkAboutItOrgFast facts to share: 1 in 26 people will develop #epilepsy in their lifetime. 1 in 10 people will have a seizure at some point during their life. #EpilepsyAwareness.
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@TalkAboutItOrg@prinsorc So glad you are nearly recovered.
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@TalkAboutItOrgSo very true. And the best attitude. https://t.co/IgAOkgme8M
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@TalkAboutItOrgGreat story on @milesdlevin, his work to end stigma and raise #EpilepsyAwareness. https://t.co/4LM2RG8rwd
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@TalkAboutItOrgRT @ROCStopSeizures: @greggrunberg Thank you so much for your support! We are sorry you will not make it to ROC's send off on October 1st. @BPmattmorgan, @longwoodfl, @1stphorm, @govjaynixon, @govrondesantis, @JazzPharma #epilepsyadvocate, #Journeyof1000Miles, #neverquit, #epilepsyawareness https://t.co/JOeABim1zm
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@TalkAboutItOrgTake a look at this amazing fantastic #EpilepsyAwareness thread from our friend @TheNotoriousEEG! Tremendous opportunities to support the indispensable work of @CookChildrens… https://t.co/1MvuLf83zn
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@TalkAboutItOrgAmazing plans @ROCStopSeizures. Thanks for being an amazing advocate. #EpilepsyAwareness https://t.co/IVXs17BK87
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@TalkAboutItOrgAre you managing your #epilepsy well? Here's a checklist from our friends at @CDCChronic to help you find out: https://t.co/XFDfT9YKsl
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@TalkAboutItOrgWhat’s one question you have always wanted to ask a medical professional?
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@TalkAboutItOrg@TiredSlytherin Hang in there, friend. You are not alone.
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@TalkAboutItOrg@BrainAblaze It’s an honor. And thank you, @BrainAblaze, for all you do, too!
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@TalkAboutItOrgOne of the most amazing things about the #epilepsy community is how we all support each other with encouragement and kindness. We see it every day. And we just want to say thank you! #EpilepsyAwareness
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@TalkAboutItOrgRemember, #epilepsy may be something you have, but it doesn’t have you. Live life to your fullest potential. #EpilepsyAwareness
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@TalkAboutItOrgExcited to see @greggrunberg on today’s #startrekday. Words that are so important well beyond Star Trek… inclusiveness, equality, hope… words that resonate strongly in the #epilepsy community. https://t.co/rqgfJdXIoX
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@TalkAboutItOrg@TiredSlytherin Slightly scared at first is understandable. But hopefully now they know more and the fear will go away. So glad they were there with you.
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@TalkAboutItOrgConnections between #epilepsy and #ADHD Explored.... https://t.co/lYFa2Q3WIB
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@TalkAboutItOrg@TiredSlytherin Was everyone cool with how they handled themselves?
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@TalkAboutItOrgWe are in awe every day by the strength and love and support in the #epilepsy community. We appreciate all of you!
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@TalkAboutItOrg@TiredSlytherin Your boyfriend is clearly awesome. And so are you.
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@TalkAboutItOrgJoin us in wishing a Happy Birthday to @PearceJoza! Pearce is a great #epilepsy advocate and actor who played the lead in the award-winning #EpilepsyAwareness short https://t.co/qrun1gCIqj. (He also plays a pretty cool werewolf in a @Disney film series. #ZOMBIES3)
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@TalkAboutItOrgThis looks like a great free webinar … and good for all of us to focus more on exercise whether we have #epilepsy or not. https://t.co/5Ee6rQSF2W
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@TalkAboutItOrgWill Artificial Intelligence (AI) soon be able to predict how much #seizure medicine you may need? #Epilepsy #NeverSettle https://t.co/mfuoomuuAf
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@TalkAboutItOrgA long Labor Day weekend is a great time to catch up on our podcasts, hosted by @greggrunberg and featuring amazing guests like @EthanSuplee @djhapa @jsirven @BrainAblaze @TiffanyKairos & @CodyBrundage185 More episodes coming soon! #EpilepsyAwareness https://t.co/Q5C9FadLAf
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@TalkAboutItOrgLove to read and share these stories about research advances. Early reports on a nasal spray anti-epilepsy drug look promising. #EpilepsyAwareness #NeverSettle https://t.co/Vpda8gMNrM
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@TalkAboutItOrg@jarivs1 Opening up to friends may be hard at first. But ultimately it’s worth it. A sign of true friendship is who wants to know about your seizures. And learn more.
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@TalkAboutItOrg@MikeKnoxComedy Love it when families connect! We see that a lot and encourage that kind of family to family bonding. They inevitably become powerful supports and friendships.
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@TalkAboutItOrg@Suber______ Fantastic. Favorite cousins are the best!!
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@TalkAboutItOrg@blinkykezz Glad your mum was right there with you. Are you glad you have spoken about your seizures to your colleagues?
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@TalkAboutItOrg@comicbookdodo Fantastic! Thanks for sharing.
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@TalkAboutItOrg@ANighsRat Good attitude to let everyone know you want to let know. And who can help you if needed.
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@TalkAboutItOrg@comicbookdodo @BrainAblaze @officedepot Excellent to hear!
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@TalkAboutItOrg@comicbookdodo @BrainAblaze Please tell us who the company is. That is wonderful.
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@TalkAboutItOrgTalking about your epilepsy and seizures is important... Who was the first person outside of your health care team you talked to about your seizures? #EpilepsyAwareness
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@TalkAboutItOrgOur friend @MiloVentimiglia talks about the importance of following your #seizure treatment. #EpilepsyAwareness. https://t.co/QCosN2sbwM https://t.co/OXL5kgZWKx
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@TalkAboutItOrg@Trev972 Awesome!
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@TalkAboutItOrgAlways progress… always new hope… Never settle! #EpilepsyAwareness https://t.co/FdFXeNLzTz
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@TalkAboutItOrg@TiredSlytherin Fortunately. Take care of yourself.
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@TalkAboutItOrgCalifornians.. please contact @CAgovernor to let them know you want the Seizure Safe Schools Act in California, AB1810, to be signed into law. https://t.co/XT2GGwU6u9
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@TalkAboutItOrgRT @greggrunberg: 7 year old Gavin is a HERO! https://t.co/8iY4sH9maC" target="_blank">https://t.co/8iY4sH9maC
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@TalkAboutItOrgCongratulations to @camilacoelho and her husband Icaro on the birth of their first child. In this @people article, she talks about becoming a mother while living with #epilepsy. https://t.co/aNKfO0GxPj
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@TalkAboutItOrgLove this! Congratulations and thanks for all you do for the community, David. (And thanks again for your fantastic interview on our latest podcast.) #EpilepsyAwareness https://t.co/Zacpr8z4CN
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@TalkAboutItOrgIf your seizures are such that wearing a helmet would be smart but you don’t want people to know you’re wearing a helmet, consider something like this. https://t.co/iz2jmnDZvx
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@TalkAboutItOrgWhat would you say is the most challenging thing about living with a chronic condition like #epilepsy?
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@TalkAboutItOrgMore behind-the-scenes with #ChrisPine, @greggrunberg, and #ZacharyQuinto for https://t.co/s6fnJnWnw6 #EpilepsyAwareness @startrek @HeroesNBC https://t.co/qxflywUDGS
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@TalkAboutItOrgBehind the scenes with #ChrisPine for https://t.co/s6fnJnEehY. #EpilepsyAwareness https://t.co/8GD97wy1yY
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@TalkAboutItOrgHappy Birthday, #ChrisPine! Thank you for helping us talk about proper #Seizure #FirstAid. (Along with your other enterprising acting partner #ZacharyQuinto.) https://t.co/s6fnJnWnw6 @StarTrek #EpilepsyAwareness https://t.co/Qvg1sajmQH
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@TalkAboutItOrgDid you know #epilepsy is the most common neurological condition seen in dogs. Our furry friends with seizures are treated somewhat similarly to humans. The American Kennel Club's Canine Health Foundation has great information: https://t.co/IVEasFDTjK #NationalDogDay
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@TalkAboutItOrgWe know some film studios and TV networks have started to become more aware of photosensitivity concern and are at least putting warnings at the top of some of their programming. But more needs to be done. And should be done. Thank you @BBCNews for this survey article. https://t.co/91MrcSWRAL
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@TalkAboutItOrgHeather, we are deeply sorry. You have our deep thanks for sharing Chase’s story with all of us, and for raising awareness about #SUDEP in his name. May Chase’s memory be a blessing. May you and yours find peace. https://t.co/zXbNihjjcB
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@TalkAboutItOrgResearch … and hope … is always progressing forward! #Epilepsy https://t.co/rfijxfFetS
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@TalkAboutItOrgSending love and support to you and Declan and the whole family. Thank you for sharing his story during this rough time. He is indeed an epilepsy warrior. #EpilepsyAwareness https://t.co/4lSWG2mSbF
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@TalkAboutItOrg@brianpulling @alanalda Yes. And his Clear and Vivid podcast is amazing too!
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@TalkAboutItOrgIs there someone you wish you could talk to about #EpilepsyAwareness but can’t or haven’t yet?
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@TalkAboutItOrgRT @greggrunberg: To understand how all of this works and be able to help those that struggle puts neurologists and neuroscientists on another level of HERO in my mind. https://t.co/994TnTZRE9
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@TalkAboutItOrgJamie, thank you for talking about it! #EpilepsyAwareness https://t.co/x2ZYf5hvdG
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@TalkAboutItOrgLove the mom/kid dynamic here… and very glad the student who had a seizure will have your child as a friend. #EpilepsyAwareness https://t.co/7FUsVybNUH
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@TalkAboutItOrgSeeing recent despicable and ugly TikTok videos and other social media designed to make fun of or even harm people with disabilities. We will not link any here or reference any so-called creators. But just ask everyone to be extra cautious. And hope for more decency overall.
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@TalkAboutItOrgNEWS: A new less invasive treatment to remove brain cells that might be causing #epilepsy seizures. https://t.co/CFyqenxNCe
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@TalkAboutItOrgWhat does the term #EpilepsyAwareness mean do you?
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@TalkAboutItOrg@realAndyExists Glad you are okay. Did the hair stylist ask you about it?
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@TalkAboutItOrg@burgessdsb So sorry to hear this.
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@TalkAboutItOrgFor our UK friends and followers… please take a look at this project on #epilepsy research priorities. https://t.co/cARbS2opw2
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@TalkAboutItOrg@80sBearfan4life Glad you are getting that test. Hope it is revealing for right diagnosis and treatment. … Also glad the menu is good.
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@TalkAboutItOrgBrilliant (and important) photo. NEVER put anything in anyone’s mouth if they are having a seizure #EpilepsyAwareness. https://t.co/1uQSPCv1k4
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@TalkAboutItOrgNew Study: Pregnant women with #epilepsy battle anxiety and depression more often than their peers who aren't pregnant or don't have epilepsy. SUPER IMPORTANT for pregnant moms to get regular screenings to maintain mental health. https://t.co/bhsP3o7WOJ
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@TalkAboutItOrgImportant info always… and especially for hot August days. Know your seizure triggers! Thank you @epilepsy_scot for this… #Epilepsy https://t.co/aVviTAq27c
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@TalkAboutItOrg@defeatepilepsy Very well said!
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@TalkAboutItOrgLook at that smile! Beck is clearly surrounded by love and support. https://t.co/D1WwZGxhxN
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@TalkAboutItOrg@CarolynFahm Beautiful vivid words. Thanks for sharing your story. You talking about it will give others hope, too.
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@TalkAboutItOrg@argentangel Yea … Unfortunately, seizures can start at any age.
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@TalkAboutItOrg@CarolynFahm Three very good words.
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@TalkAboutItOrg@LorrieForseth As you know, there are a number of different seizure detection devices out there — and more coming to market all the time. Our friends at @DannyDidOrg have a pretty comprehensive list: https://t.co/mR9TnlvhXb. Might want to share this with your neurologist, too.
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@TalkAboutItOrgMore than okay! Thank you, @TiffanyKairos, for your wise words. Loved what you said in our latest podcast, too! https://t.co/hHnxGwgyjn
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@TalkAboutItOrg@lizbarnesrhyl Great life philosophy!
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@TalkAboutItOrgStress is a big trigger for #seizures. What do you do to unwind and relax if stress threatens to get to you?
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@TalkAboutItOrgThank you, @usnews, for publishing this today about ways lifestyle changes can help reduce #seizures. We especially like the recommendations about exercise and getting emotional support. #EpilepsyAwareness https://t.co/3l66eFXmq8
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@TalkAboutItOrgSo many heroes of the #epilepsy community! We feature a few on our latest episode. But they are representative of many, many who help raise #EpilepsyAwareness! To all of you, we say thanks… and enjoy the show! https://t.co/yNM1KbExvf
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@TalkAboutItOrgRT @greggrunberg: SOCIAL MEDIA HEROES on this episode of my #epilepsy #podcast #talkaboutit https://t.co/zdisC1PaiN" target="_blank">https://t.co/zdisC1PaiN https://t.co/S5u3c7A5NE" target="_blank">https://t.co/S5u3c7A5NE
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@TalkAboutItOrgNEW POD EPISODE: Look… Up in the Sky…! It’s #EpilepsyAwareness Social Media Heroes. Hosted by @greggrunberg https://t.co/Q5C9FadLAf https://t.co/8MUGA61gru
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@TalkAboutItOrgFrom fashion model to neuroscientist seeking cures for #epilepsy. This is a great story: https://t.co/RUDyMuURYP
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@TalkAboutItOrgWell said! A mantra that should be taken to heart. https://t.co/8NjlMbgXzG
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@TalkAboutItOrgRT @greggrunberg: SOCIAL MEDIA HEROES you know who you are! @BrainAblaze @TiffanyKairos & MORE on THIS episode of #TalkAboutIt! https://t.co/uYkvUjSAZG
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@TalkAboutItOrgNEW POD EPISODE: Social Media Heroes. @greggrunberg hosts! https://t.co/IdV6Fh5mc5 https://t.co/18HpgqXmue
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@TalkAboutItOrgRT @greggrunberg: If you think you know Cody Brundage, think again. He’s a fighter both in AND out of the ring. Hear the story of his beautiful family and his daughter’s struggle with seizures on this episode of Talk About It! https://t.co/J0tztuVtH3
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@TalkAboutItOrg@LorrieForseth @greggrunberg Thanks for the shout-out, Lorrie. And for all your amazing advocacy work. We just finalized the next episode of the pod which will be dropping very soon. We think you (and everyone) will really enjoy it. :)
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@TalkAboutItOrgResilience. The #epilepsy community is filled with resilience. I know many of you will say we need to be. Yes. But don’t take it for granted. Resilience is strength.
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@TalkAboutItOrg@char_charmed You absolutely shouldn’t. But hang in there.
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@TalkAboutItOrgTiffany… we love this attitude. Thank you for setting an amazing example. https://t.co/gc8AszxHu9
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@TalkAboutItOrg@brianpulling Thank you Brian. We are honored to be able to be there for you.
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@TalkAboutItOrgBrian… congratulations on a year and a week. And thanks so much for the shout-out. Seizure first aid…. Everyone needs to know it. Thanks again! #EpilepsyAwareness https://t.co/SRbUlbEruz
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@TalkAboutItOrg@_lxlyevie Awesome!
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@TalkAboutItOrgA great organization. Thanks for sharing, Sarah. @CureEpilepsy. Check them out! https://t.co/Vu0eguVByh
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@TalkAboutItOrg#BacktoSchool time is a good time to think about #Seizure Action Plans -- personalized guidelines on how to respond to a seizure, based on medical history. Very important document, not just for students, but for everyone living with seizures. Learn more: https://t.co/sCkQmbmiyy
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@TalkAboutItOrg#BacktoSchool time! Parents -- Have you explored an Individualized Educational Plan (IEP) for your child if needed? Our friends at @CureEpilepsy have some good advice: https://t.co/mUlQWmD7zS
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@TalkAboutItOrg#BacktoSchool time! Parents of students living with #epilepsy or other chronic conditions, do you have good communication with your kid's teachers and other school personnel?
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@TalkAboutItOrg@JaneTown23 We agree.. thank goodness! We hope you will be recovered soon.
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@TalkAboutItOrgThank you, @vinayjani, for talking about it! #EpilepsyAwareness https://t.co/dubJg1qNBd
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@TalkAboutItOrg@1Purplewarrior5 Sorry to hear your seizure activity has changed so much. But glad to hear you are in close touch with your neurologist. So important!
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@TalkAboutItOrg@mochapassion_ You are not alone! There is an amazing community to help you. And we hope your health care team will work closely with you to get the best treatment possible.
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@TalkAboutItOrgThanks for sharing this tweet and helping! This link can help people know what to do if they see someone having a seizure: https://t.co/s6fnJnVPGy. #EpilepsyAwareness https://t.co/pycFPMeR9S
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@TalkAboutItOrg@epilepsy_scot Thanks for staying on top of this for folks. Everyone eligible should get those vaccines.
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@TalkAboutItOrg@HandyManSam4 Have you talked to your health care team about the side effects and looked at other options? New treatments are always worth exploring.
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@TalkAboutItOrg@EPICLongIsland What a great idea! :)
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@TalkAboutItOrgLove this chart. We stand with you and applaud your work, @IlaeWeb. By 2031 90% of people with #epilepsy will understand their diagnosis & options? And stigma-causing myths will be all but gone? We can get behind that! And do! And working together let’s make it sooner than 2031. https://t.co/dLabTRehau
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@TalkAboutItOrg@realAndyExists Glad you are okay!
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@TalkAboutItOrgThank you, @MaisieAdam, for talking about it and for being a role model. #EpilepsyAwareness https://t.co/d1mJ4j5z9k
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@TalkAboutItOrg@AshleighSheCann @LHSCCanada We are glad you and your medical team were persistent in their exploration and diagnosis. Wishing you the best with your treatment plans!
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@TalkAboutItOrg@iamyeesha__ There are many kinds of treatments that work variably depending on the kind and frequency of seizures you have. But there is no definitive cure.
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@TalkAboutItOrg@pvrko_ome @NeuroPace Wonderful news!
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@TalkAboutItOrgCongratulations to Ruby and to you, Dad! You both have many reasons to be proud. Ruby’s smile just beams with delight. Thank you for sharing her story with us. https://t.co/lqBrUrUp72
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@TalkAboutItOrgToday is #InternationalCatDay — yep!Let’s celebrate cats, dogs, & any pet that gives you peace, comfort, & joy. Please tell us a story or share a picture of your furry friend. Also - here’s an organization all about seizure dogs. (The cats won’t mind.) https://t.co/Mi0snlXXUa
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@TalkAboutItOrg@MosesMimie Very true and very well said. Thank you!
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@TalkAboutItOrgLove the smile, the Spider-Man hat, the sign he is holding, and the hashtags. Congratulations, little guy! Great work! https://t.co/SCOJhg0qC6
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@TalkAboutItOrgYes, we have @StarTrek's Kirk and Spock telling us about seizure first aid (https://t.co/s6fnJnVPGy), but we also have @TheOrville's Lt. Gordon Malloy (https://t.co/IrCr0M9f5L). Thank you, #ChrisPine, #ZacharyQuinto, and @ScottGrimes #EpilepsyAwareness https://t.co/YRtJ2afxud
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@TalkAboutItOrgLet's celebrate #epilepsy heroes this weekend! Who is your hero? https://t.co/6mlxvjoBJT
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@TalkAboutItOrgAre you caught up? More amazing podcast episodes coming very soon.... #EpilepsyAwareness https://t.co/Q5C9FadLAf
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@TalkAboutItOrgIf you or someone you know is newly diagnosed with #epilepsy, here is a great summary of what you need to know from our friends at @MayoClinic. https://t.co/dpvSlbdjNs.
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@TalkAboutItOrgKnowing Seizure First Aid is only logical. @StarTrek #EpilepsyAwareness https://t.co/s6fnJnVPGy
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@TalkAboutItOrgHot Yoga, anyone? https://t.co/c0YHzqyhmP
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@TalkAboutItOrgHas a comment or advice from your #epilepsy (or other chronic illness) health care team ever surprised you?
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@TalkAboutItOrgWhat's the best or most important question you have ever asked your health care team? #EpilepsyAwareness
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@TalkAboutItOrgAs we move into August, here's a reminder of tips and tricks to continuing enjoying your summer from our friends @BCEpilepsy #EpilepsyAwareness https://t.co/ZPKDlqFaq0
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@TalkAboutItOrgShare the facts: Approximately 1 in 10 us will experience a seizure during their lifetime. Those with a risk of recurrent unprovoked seizures are considered to have #epilepsy. One in 26 of us will develop epilepsy in our lifetime. #EpilepsyAwareness RT
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@TalkAboutItOrg@burgessdsb Best of luck to you. And glad you are taking these steps to take care of yourself.
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@TalkAboutItOrg@businessgoos3 A very helpful life skill, for sure. Thanks for sharing!
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@TalkAboutItOrg@DCClifford Excellent!
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@TalkAboutItOrg@sexton_cecilia Thanks for sharing your story. It shows the importance of talking about it with others!
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@TalkAboutItOrg@teletran33 We hope you and your health care team are working together well and things are improving for you.
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@TalkAboutItOrg@HMP_Ober Alas… Very true
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@TalkAboutItOrg@BizzbuzzLiz Awesome!
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@TalkAboutItOrg@mohawkkey Exactly! Well said! Thank you!
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@TalkAboutItOrg@burgessdsb What do you think you can do to help them be more comfortable? Perhaps ask them to check our https://t.co/YxQEip001o.
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@TalkAboutItOrg@The_Hermithood Have you checked to see if there is a local epilepsy support organization in your town?
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@TalkAboutItOrgIf you have #epilepsy, does your best friend know what to do if you have a seizure?
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@TalkAboutItOrgWe know stress is a big trigger for #seizures. Anything you can do to reduce your stress will help. For example, this mom uses taekwondo to help "take down" her #epilepsy. https://t.co/0NKxg6B2z7
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@TalkAboutItOrgLove the @RochesterBeacon story by Amer, a high school student helping his local #epilepsy center. "While my condition has caused some problems, others with epilepsy have it much worse. That’s why I’m organizing...Seize the Day: Amer’s Trail Epilepsy Run." https://t.co/kZoRnpMDVI
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@TalkAboutItOrgAre you comfortable talking to your health care team about your #epilepsy and seizures?
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@TalkAboutItOrgToday is the 32nd Anniversary of the Americans with Disabilities Act. Thanks to our friend @HonTonyCoelho who led the charge to create this important law. The ADA has literally changed the world for millions of people. Know your rights under ADA: https://t.co/Adk9Os13nu #ADA32
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@TalkAboutItOrg@pvrko_ome @IlaeWeb Thankful you ultimately did get better explanations and treatment for your daughter.
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@TalkAboutItOrgA new @IlaeWeb consensus report says #epilepsy surgery should always be recommended as soon as a person's epilepsy and seizures are shown to be drug resistant. If your seizures have not responded well to medications, have you talked about surgery with your health care team?
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@TalkAboutItOrg@UMEpiCNPFellow @tuhina_govil @AndersenShemme @Ibajjio @UMneurosciences Welcome… and thank you!
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@TalkAboutItOrg@epilepsysociety Congratulations on 130 years of helping people in #Buckinghamshire with #EpilepsyAwareness and research.
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@TalkAboutItOrg@JAMortram Thank you for sharing!
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@TalkAboutItOrgAmen. https://t.co/lQNMvVBk1K
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@TalkAboutItOrgAnyone. Any time. Anywhere. Any. Age. So true. Thank you, @LorrieForseth for your continual push toward #EpilepsyAwareness and #SUDEP awareness. https://t.co/NBxmWo8emf
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@TalkAboutItOrgSuccinct and to the point! https://t.co/sCGXSNzCFw
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@TalkAboutItOrgImogen Clark’s love of swimming was stronger than her fear of seizures. The 2022 Birmingham Commonwealth Games athlete says, “[#Epilepsy] has definitely shaped my resilience. It’s made me the person I am today.” Thank you, Imogene, for talking about it. https://t.co/8cqGwKEx28
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@TalkAboutItOrgWhat’s one thing you would want everyone to know about #epilepsy and seizures?
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@TalkAboutItOrgThank you @Carlajjeffery for talking about your #epilepsy in this great video with your @DisneyChannel fellow actors. #DisabilityPrideMonth (BTW, we love the #ZOMBIES series, featuring another great #EpilepsyAwareness advocate & friend: @PearceJoza) https://t.co/KnihmAjQQK
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@TalkAboutItOrg@ErinZirpolo @Bryan_TGP @iampaulgrenier Sometimes our own egos get in the way of doing what is best for us, health-wise. Being a friend is important, even if that means being a nudging friend.
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@TalkAboutItOrg@jarivs1 You should look into it again. Seizure tracking diaries are great tools, but, yes, they require work… but it’s worth it. Especially if you are looking to improve seizure management.
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@TalkAboutItOrgSome of our followers talked about the importance of keeping a journal & tracking your seizures. We agree! Take notes. Memory is fleeting. A journal or a calendar of seizure activities & thoughts about them will help with your health care visits. (TY @LorrieForseth & @LAFox)
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@TalkAboutItOrgGreat comment, Paul. Don’t be too hard on yourself (or your loved ones). We ALL have good days and bad days. We get through all our days together with patience and compassion. https://t.co/LQZFYZzjiL
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@TalkAboutItOrgVery important point. Medication levels in the body need to be maintained or else there is a risk of a breakthrough seizure. Keeping up with your meds is very important. Skipping a dose or two is not a casual choice. Consistency is essential. Thanks for the response! https://t.co/nAbzPD5Kkj
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@TalkAboutItOrgWhat's the best advice you have ever received about #epilepsy and seizures from a health care professional?
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@TalkAboutItOrgYou should celebrate. And you should know that the Epilepsy community is celebrating with you. We’re here for the good times and we’re here for the tough times. #YouAreNotAlone https://t.co/pMxAQ9qE84
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@TalkAboutItOrgImportant news: The new 988 mental health hotline in the US launched today. Please remember that you are not alone and if you ever have any thoughts of self-harm, please reach out right away for help. https://t.co/CyHagw9TFJ
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@TalkAboutItOrgOUT NOW! Search “Talk About It with Greg Grunberg” wherever you grab your podcasts. https://t.co/jVzoljAAYJ
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@TalkAboutItOrgRT @greggrunberg: DROPPING SOON! @CodyBrundage185 v @greggrunberg #MMA #UFC @ufc https://t.co/uwEmWsxH93" target="_blank">https://t.co/uwEmWsxH93
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@TalkAboutItOrgAbsolutely agree. Everyone needs to talk about their #epilepsy and seizures to at least someone…. It’s important, helpful, cathartic, and healthy. This is why we say and call ourselves “Talk About It!” We want to help get the entire community talking and sharing together. https://t.co/s2jN8w7ytR
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@TalkAboutItOrg@lizbarnesrhyl @iampaulgrenier @BrainAblaze @EpilepsyFdn @EpilepsyFdnLA @epilepsysociety @epilepsyaction Absolutely agree. Everyone needs to talk about their #epilepsy and seizures to at least someone…. It’s important, helpful, cathartic, and healthy. This is why we say and call ourselves “Talk About It!” We want to help get the entire community talking and sharing together.
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@TalkAboutItOrg#Epilepsy and seizure research is always moving forward... #EpilepsyAwareness #NeverSettle https://t.co/Ml50Z7QNFu
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@TalkAboutItOrg@iampaulgrenier @Bryan_TGP @BrainAblaze @EpilepsyFdn @EpilepsyFdnLA @epilepsysociety @epilepsyaction Sadly epilepsy stigma has been around a long time and was once a lot worse than it is today. Many older who live with epilepsy felt the need to hide it because of shame & fear. Things are changing now, thanks to more education, awareness and new attitudes. More to do, of course…
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@TalkAboutItOrg@TorieRobinson10 @IlaeWeb @cristinareschke @Chris_Lisgaras @AllanBayat @EpiCARE_ERN @Anne_Rbrt @ExcitedBrains @rkalviainen @yesILAE Thank you all for your dedication to helping improve lives of people impacted by epilepsy! #heroes
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@TalkAboutItOrgAs a person living with #epilepsy or a care giver, here’s your chance to participate in a survey about climate change, health, and the impact on seizures… https://t.co/ABPIAzqXaM
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@TalkAboutItOrgBritish government has been in the news a lot lately… here is a video of Members of Parliament talking about coming together for a new law to fight #epilepsy trolling online. https://t.co/aKlDbXRmN3
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@TalkAboutItOrgVery well said! And so true! https://t.co/xvgSfscTt3
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@TalkAboutItOrgSarah Carlson had a seizure on air while anchoring the news. Since then, she has helped raise #EpilepsyAwareness. This is a great story about two years of being seizure-free. https://t.co/FTtgrY4sTP
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@TalkAboutItOrgRT @BrainAblaze: Help us wish actor and #epilepsy advocate @greggrunberg a very happy birthday today! -- Thanks so much, Greg, for all that you do to raise #EpilepsyAwareness! https://t.co/sGw4v5e5Mr
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@TalkAboutItOrgWe are fortunate to have many medical professionals following us. What would you say is the most important question someone should ask their doctor about their #epilepsy and seizures?
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@TalkAboutItOrgLoving the great advice everyone is sharing with each other. Let’s share some more! What’s the best or most important question you have ever asked your medical team about your #epilepsy and seizures?
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@TalkAboutItOrgPlease join us in wishing our co-founder and hero @greggrunberg a very Happy Birthday! https://t.co/wLHQFsDUdr
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@TalkAboutItOrgRT @greggrunberg: If you haven’t gone to https://t.co/cLA0xUZJBk" target="_blank">https://t.co/cLA0xUZJBk take a min and check it out. https://t.co/dmG6TP78Kq" target="_blank">https://t.co/dmG6TP78Kq
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@TalkAboutItOrgHBD SCOTT WE ❤️ U! Watch @greggrunberg and “BIRTHDAY BOY” @ScottGrimes discuss "When To Call 9-1-1" in the c... https://t.co/lz33g1JC9C
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@TalkAboutItOrg@jarivs1 Beautifully said.
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@TalkAboutItOrgGood news out of Arizona … researchers may have found an explanation for some types of #epilepsy. https://t.co/AiMotrzgkV
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@TalkAboutItOrgBesides seizures, what’s your biggest challenge of living with or caring for someone living with #epilepsy?
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@TalkAboutItOrgLearning and connecting with your communities of support are essential, whether those communities are personal through friends and family or through broader health and governmental community services. Thanks for the advice and sharing your family story. https://t.co/TqfEpKNUUK
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@TalkAboutItOrgLove this advice! Treat your children with dignity and let them live the best lives they can. And make sure you watch your vocabulary… don’t let the epilepsy and seizures define them or you. https://t.co/CgjObLUzuK
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@TalkAboutItOrgIt can be a very long and chaotic journey. And very tough at the beginning. But this is excellent advice… stay calm. https://t.co/shFvK5L0Ha
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@TalkAboutItOrgYes. Make sure you prepare in advance for every medical appointment. A journal is a great tool. And do not be afraid of asking the hard and tough questions. And use the journal to help you prepare to ask and to record your thoughts on the answers. Thank you for responding. https://t.co/4XXyJCByM8
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@TalkAboutItOrgSuper important as a caregiver to make sure you take care of yourself, too. And yes, definitely a learning curve. Don’t beat yourself up as you learn what to do and what not to do. Excellent points. https://t.co/Ump2xuZIEX
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@TalkAboutItOrgKeeping a journal is a great idea! Thoughts are fleeting especially when distracted by taking care of a loved one. Journaling will help you remember important thoughts to discuss with your health care team or with others. https://t.co/gM1TxNNUey
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@TalkAboutItOrgThank you for sharing your story. Ask questions. Seek quality advice. And hold on to your hopes and your dreams. https://t.co/lbO8NKVzeV
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@TalkAboutItOrgExcellent advice. Dr. Google is never right. And yes, patience is key to finding the right treatment and a community is essential. Thanks for the response. https://t.co/7SdYBTzbuv
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@TalkAboutItOrgAdvice you would give the parent of a child newly-diagnosed with #seizures?
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@TalkAboutItOrgSo important… please be cautious what you post and let people know if you are putting up videos of fireworks or other flashing lights. https://t.co/fg1Mib3lxA
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@TalkAboutItOrgGreat to see and celebrate all these fresh new faces in the world of #epilepsy science and research! https://t.co/zuVvZqPHxJ
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@TalkAboutItOrg@_Nishant_Sinha @BrianLitt2 @katedavis12341 @PennNeurology @VickyLMorgan @Englot @bonilha_lab @e_gleich Congratulations!
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@TalkAboutItOrgAsking the Tough Questions to @jsirven. This and all our podcasts, hosted by @greggrunberg, are available at this link https://t.co/igXAjHrLAW. Or search Talk About It with Greg Grunberg wherever you get your pods. New episodes. New amazing guests. Coming very soon... https://t.co/SAYQEnbAfD
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@TalkAboutItOrgHey… we know that guy! https://t.co/P7DkNyevaa
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@TalkAboutItOrgAn important thread to follow… https://t.co/FmfoNUbk0R
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@TalkAboutItOrg@LeastRoad @geostylegeo Amazing! Thank you!
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@TalkAboutItOrg@EmmaIS_ca @epilepsytoronto Fantastic!
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@TalkAboutItOrgSummertime is a great time for riding a bike and enjoying the outdoors. Everyone, if you live with #seizures or not, should always wear a helmet and reflective clothing while biking. Have fun! https://t.co/FEKgpoEuCA
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@TalkAboutItOrgToday is #DravetAwarenessDay. Dravet syndrome is a rare form of intractable #epilepsy. It begins in infancy and proceeds with accumulating morbidity significantly impacts individuals through their lifetime. To lean more, visit (and support) our friends at https://t.co/HuW1JJJrK1
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@TalkAboutItOrgYou can make a big difference by taking this survey from International League Against Epilepsy - a global group of #epilepsy medical professionals. Tell them what you think are the most important treatment outcomes: For example: Less seizures? Less side effects? Talk about it… https://t.co/G5S1ofMIUJ
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@TalkAboutItOrg@mbtunited Amazing moment. Thank you for sharing.
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@TalkAboutItOrg@EmilyMi77220370 Sage words of wisdom… Thank you!
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@TalkAboutItOrg@UMEpiCNPFellow @wesleytkerr @NishadShaheid Congratulations!! Thank you for choosing a career helping people with #epilepsy.
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@TalkAboutItOrg@1Purplewarrior5 Good plan. Sorry to hear about the delays. Please have a very Happy Anniversary trip.
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@TalkAboutItOrg@Jadekassoleeee So glad you and your child are okay.
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@TalkAboutItOrgWhat is the risk of #epilepsy after concussions? This article has some good info… https://t.co/HvVmFCDzwy
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@TalkAboutItOrgSummer is back and so is travel! Always remember to make sure and double check you have all your medications packed with the right amount for the total number of days of your trip. And also a good idea to plan for a few extra days of meds... just to be safe. https://t.co/12YXAyITkF
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@TalkAboutItOrg@iwillbenoOne @BrainAblaze Thank you for sharing. We are glad your therapist is so helpful. Hopefully you can enjoy the water with a close friend.
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@TalkAboutItOrgIf you are swimming this summer, and live with #seizures, always make sure you swim with a partner who is aware of your seizures and knows that to do if you need help in the water. https://t.co/fhRN6D7Zvp
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@TalkAboutItOrg@VincentPastor7 Thank you for talking about your #epilepsy. We suspect someone with epilepsy who may be hesitant to talk about it is reading your tweet and feels comforted. And also… #Kraven: Last Hunt is great comic. We hope they do it justice too.
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@TalkAboutItOrgThis is simply awesome! Thank you, @kimleadbeater and @epilepsysociety for making #ZachsLaw happen. And thank you, Parliament, for recognizing that online trolling of people with #seizures is real, is dangerous, and needs this protection. Bravo! https://t.co/n6lwmgFiad
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@TalkAboutItOrg@HillQuilty Thank you for sharing. And the twin will soon have a great chauffeur.
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@TalkAboutItOrg@annie_cummins8 You are far from alone. Make sure seek out community support. Our followers, for example, are very welcoming and supporting. Also check out @BrainAblaze and others.
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@TalkAboutItOrg@mayceemace Never hesitate to seek a second opinion on diagnosis and medications.
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@TalkAboutItOrgNew research hints underlying drug resistance for #seizures is different for women and men. https://t.co/1smRELlMgl
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@TalkAboutItOrgSummertime! Lots of fun activities in the hot weather! Make sure you stay hydrated. I know... an obvious suggestion... but, many people get so focused on a good time they forget to drink that water! Don't forget... dehydration happens much faster than we think in the hot sun. https://t.co/U5SKbcSXzW
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@TalkAboutItOrgThis is an excellent Infographic all about #epilepsy and #seizures — both in English and in French. https://t.co/uwpob8jACT
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@TalkAboutItOrgSummer is (almost) here! Very important to do two things... Have fun and stay safe! We will be sharing important safety tips this week for people living with #seizures ... and just some smart things for all of us to do to get the most out of the summer.
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@TalkAboutItOrgICYMI, Check out @greggrunberg's amazing interview with @EthanSuplee on our podcast. https://t.co/PMIKVzHF64 https://t.co/o3zv1oii9h
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@TalkAboutItOrg@1ProudCdn Amazing goals. We love them!
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@TalkAboutItOrgHAPPY FREEDOM DAY! Juneteenth commemorates June 19, 1865, the date on which enslaved people in Galveston, Texas, finally received the news they were free - two years after President Lincoln’s Emancipation Proclamation, one year after the 13th Amendment, abolishing slavery. https://t.co/7eiC88b1sW
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@TalkAboutItOrgHere’s to the Dads… Our caregivers, our friends, and our heroes! Happy Father’s Day! https://t.co/kIXgifBKlx
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@TalkAboutItOrg@jamesedwardjr Wonderful news!! Happy Anniversary!
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@TalkAboutItOrgInteresting article on research with helpful insights on why #ADHD and #epilepsy often occur together and how to approach treatment. https://t.co/EuqRb4IfGt
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@TalkAboutItOrg@erenswaifu12 So sorry to hear this. Your boss should become more familiar with the Americans with Disabilities Act. https://t.co/t9l75DXzV5
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@TalkAboutItOrgToday is International CDKL5 Awareness Day. CDKL5 Deficiency is a form of drug resistant genetic #epilepsy starting in the first weeks after birth. Affects 1 in 40,000- 50,000 births. To learn more, visit https://t.co/qSwr8DQKXv https://t.co/7d8XXchVi5
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@TalkAboutItOrgDevastated hearing of the passing of our good friend and brilliant comic book artist #TimSale. Tim was so generous and always there to help us support Talk About It. He even made us this brilliant poster one year. Tim, thank you! We miss you already! https://t.co/bGh5Na4wau
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@TalkAboutItOrgLove this! Our origin story and why it is so important to share stories and talk about it! Thank you @BrainandLifeMag and thank you as always to @greggrunberg #EpilepsyAwareness https://t.co/xrVMd75WSx
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@TalkAboutItOrg@seizure254 Yes they do.
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@TalkAboutItOrgLove this… Congratulations Anthony! It’s young folks like you who help inspire so many to be strong, too! https://t.co/GaUaQCaSkf
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@TalkAboutItOrg@AshleySabbe Hopefully not. Have you explored all recent treatment options with an #epilepsy specialist? New options are becoming available regularly.
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@TalkAboutItOrg@hmeireles77 @samanthamacher @EpilepsyArt Amazing film!
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@TalkAboutItOrg@pvrko_ome Thank you for talking about your family story and raising #EpilepsyAwareness!
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@TalkAboutItOrgThank you, @USNewsHealth for this report on Best Children’s Hospitals for neurology and for mentioning #epilepsy. https://t.co/hbTvTHGMDB
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@TalkAboutItOrg@yaz_golding Beautiful tweet. Thank you for sharing!
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@TalkAboutItOrg@char_charmed This tweet makes us absolutely believe your boy will be okay because he has you.
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@TalkAboutItOrg@TheNotoriousEEG @curedravet Very cool design!
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@TalkAboutItOrg@mexiforniaD Wishing you the best!
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@TalkAboutItOrg@amnesiaems Take the time you need to take care of yourself first and foremost. It’s like you hear on the plane. But on your mask to breath first before you help others. Hope things get better for you.
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@TalkAboutItOrg@TheJudeTaylor Understandable, but sometimes talking about epilepsy or any chronic disease can help raise awareness among your community and therefore reduce any risk of pity. Your story is important.
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@TalkAboutItOrgImportant research and good news from our friends at @CureEpilepsy… https://t.co/l3GgpD7glq
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@TalkAboutItOrgWhat’s the best advice you ever got from - or gave to - someone about living with #epilepsy or other chronic disease?
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@TalkAboutItOrgCongratulations, @milesdlevin! We are so proud of you! So awesome! So well deserved! So inspiring! Thank you to all the fans who voted for Under the Lights! #EpilepsyAwareness https://t.co/ja9dKtqL0X
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@TalkAboutItOrgRT @TalkAboutItorg: Our friend @milesdlevin created a powerful #epilepsy short film starring @PearceJoza, produced by @greggrunberg. “Under the Lights” may become a feature! Go to @ATT on 6/10, 10:30 a.m. ET. Hear Miles pitch the film & then you can vote to help get $1M in funding. #ATTUntoldStories https://t.co/kgHZSVdsO2
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@TalkAboutItOrg@hewnique @EKHUFT Yes. Unfortunately. One of many persistent myths. The CDC has notification about this on their epilepsy site. We are passing on the info to help make sure anyone out there who may still believe this is better informed. https://t.co/CIiuUjvEBO
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@TalkAboutItOrgSome Friday Facts to Share: One in 26 people will develop epilepsy in their lifetime. A person with #epilepsy is NOT contagious and CANNOT give epilepsy to another person. Please RT.
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@TalkAboutItOrgOur friend @milesdlevin created a powerful #epilepsy short film starring @PearceJoza, produced by @greggrunberg. “Under the Lights” may become a feature! Go to @ATT on 6/10, 10:30 a.m. ET. Hear Miles pitch the film & then you can vote to help get $1M in funding. #ATTUntoldStories https://t.co/kgHZSVdsO2
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@TalkAboutItOrg@hollyjoengle Keep your eyes open for those options. New ones available often.
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@TalkAboutItOrg@BrainAblaze @FlossieRoss1971 Correct. People should always push to live to their fullest potentials whether living with seizures or not. But if you still live with seizures, keep seeking new treatments and options to see about stopping those seizures.
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@TalkAboutItOrgIf you are still having seizures, have you sought out a new treatment option?
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@TalkAboutItOrgThis article has some heavy sciencey language — but it proves that research is always happening into causes of all kinds of #epilepsy — including early developing #seizures. Ongoing research means always new hopes for new treatments. https://t.co/ZCoMm1SEh2
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@TalkAboutItOrgWhat’s your go-to song to put you in a good mood?
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@TalkAboutItOrgIf you sometimes wonder if #epilepsy will stop you from reaching your full potential, here are some people who also lived with seizures. Vincent Van Gogh. Beethoven. Michelangelo. Agatha Christie. Don’t let #seizures stop you from dreaming big. https://t.co/qdpFkj3JMy
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@TalkAboutItOrgA beautiful way to honor the memory of a son… and to raise #EpilepsyAwareness https://t.co/24wS61dGac
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@TalkAboutItOrgWe have a new podcast out… powerful community voices from across Twitter sharing their #epilepsy and #seizures stories with @greggrunberg in a recent Spaces. (Greg will be hosting more Spaces soon.) Listen wherever you grab your podcasts. https://t.co/folEM3bK3C
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@TalkAboutItOrgDo not hesitate to seek OUT new opinions and treatment options if your seizures are not controlled. (Sorry for the typo below… We are not doctors or medical experts, but we do encourage the community to stay educated and informed as much as possible.) https://t.co/Fxi4tYIcTx
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@TalkAboutItOrgWe have said this before.. but it bears repeating… If your seizures are not controlled … do not settle… and do not hesitate to seek out new opinions and treatment options.
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@TalkAboutItOrg@vanwalterop Make sure you talk to your docs about those side effects… new treatments may hold your seizure control and improve your side effects. Worth talking about with your health team. New options occur often.
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@TalkAboutItOrgNew treatments for #seizures are being developed all the time. Clinical Trials are definitely worth exploring if you have uncontrolled seizures and have explored currently available options. https://t.co/vjqjf1XW0i
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@TalkAboutItOrgI know… we have said this before.. but it bears repeating… If your seizures are not controlled … do not hesitate to seek our new opinions and treatment options.
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@TalkAboutItOrgWe know sometimes you can feel alone if you have #seizures. We are here for you … and there is a whole community here for you and for each other. Lots of people live with #seizures and #epilepsy. Here are some numbers … https://t.co/ZPWqHVft0j
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@TalkAboutItOrgRT @greggrunberg: Know what to do! https://t.co/pu1s47D5tK" target="_blank">https://t.co/pu1s47D5tK
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@TalkAboutItOrgAs UK #NationalEpilepsyWeek is coming to a close, we salute our friends at @epilepsy_scot. They provide support and services to the approximately 1 in 97 people who live with #epilepsy in Scotland. That’s around 55,000 people.
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@TalkAboutItOrgAs we move into #MemorialDay weekend, please find quality time to spend with your loved ones and time to remember and honor those who are no longer with us. Wishing you all the best for a safe and peaceful weekend.
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@TalkAboutItOrgThis UK #NationalEpilepsyWeek, we note the excellent research and awareness work of @SUDEPaware . Sudden Unexpected Death in Epilepsy is always a hard topic to talk about it— But very important to address. Thank you to this group and others who bring #SUDEP much needed attention.
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@TalkAboutItOrgWe are already missing #ThisIsUs, but are super-appreciative of our friend @MiloVentimiglia talking about important issues with us: https://t.co/NMWxDx13MV
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@TalkAboutItOrgPowerful and touching family story out of the UK during #NationalEpilepsyWeek. https://t.co/08xcjZoW45
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@TalkAboutItOrg
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@TalkAboutItOrgFor #NationalEpilepsyWeek in the UK, @epilepsysociety has put together some powerful personal stories: https://t.co/rZEfPBP1Zv
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@TalkAboutItOrgToday is #NationalBrothersDay celebrating all our siblings: https://t.co/7ogWp4uJnR
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@TalkAboutItOrgThank you to @WTEN in Albany, NY for talking about #epilepsy and women, and for helping to debunk some #seizure symptom myths. https://t.co/LZvuN5t8JR
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@TalkAboutItOrgIt is UK #NationalEpilepsyWeek. From our friends at @epilepsyaction: "Around half a million people in the UK have epilepsy, but the effects are felt by millions more." This week, we will highlight some of the amazing UK groups who do great work all year. https://t.co/QBDfy89Bna
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@TalkAboutItOrg@iampaulgrenier You will be okay. Great attitude and strength, Paul.
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@TalkAboutItOrg@RebelSpeducator Excellent!
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@TalkAboutItOrg@DCClifford Thank you for the response — and for being such a leader in #EpilepsyAwareness. Knowing triggers is extremely important. And learning how to navigate them to make sure you are living life to your fullest potential is just as important.
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@TalkAboutItOrg@RebelSpeducator Thank you for sharing. How do you respond to those people?
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@TalkAboutItOrg@prinsorc Love hearing this!
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@TalkAboutItOrgIn your opinion, what is the most challenging part about living with #epilepsy?
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@TalkAboutItOrg“I want people to know that we can achieve a lot if we are able to participate.” Beyond inspiring!! Congratulations to @UCBerkeley graduates David and Hari! https://t.co/N48zLTaRNl
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@TalkAboutItOrgNew details are emerging about traumatic brain injury (TBI) and developing #epilepsy. https://t.co/ngxGM5NfWa
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@TalkAboutItOrgMemorable blog from our friends @CDCChronic: Loving Someone with #Epilepsy — ‘When Zayan first told me that he has epilepsy, I didn’t believe him. “You mean seizures, right?” I was embarrassed at how much I didn’t know.’ https://t.co/Te7AuGkxNd
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@TalkAboutItOrg"With #epilepsy, stress can cause a seizure," said Jessie Lentz. "And with martial arts, I am stress-free." https://t.co/lWwnIcZsju
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@TalkAboutItOrg
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@TalkAboutItOrgWe stand against homophobia, transphobia, and biphobia. #IDAHOBIT2022 https://t.co/BaR1Rf0D3I
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@TalkAboutItOrgThank you to the @WHO for putting out this great poster on #seizure First Aid. You can also learn more at https://t.co/s6fnJnVPGy (Thank you also to #ChrisPine and #ZacharyQuinto of @StarTrek) https://t.co/VzwY2W5Wr2
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@TalkAboutItOrgRT @greggrunberg: If you witness a #seizure, never ever stick anything in their mouth. They cannot and will not choke on their own tongue. That is a myth. Educate yourself at https://t.co/cLA0xUZJBk https://t.co/J8m9MNKuiR
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@TalkAboutItOrgLoving all the amazing, thoughtful, wonderful comments from our community. THANK YOU! Talking about it together just helps make us all stronger together. Keep it going… #EpilepsyAwareness
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@TalkAboutItOrgMay is #MentalHealthAwarenessMonth. While #epilepsy is NOT a mental health condition, living with #seizures can have an impact on mental health. This is a great summary of epilepsy, health, & wellbeing from our friends at Epilepsy Foundation in Australia: https://t.co/ZJO3ZZbd1o
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@TalkAboutItOrgMore amazing advice from our community. Keep it coming… and thank you…! https://t.co/IKxlS6dzml
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@TalkAboutItOrg@treegal2700 @yaz_golding Keep a list of the good and happy and joyful in your life. When times are tough or rough, turn to that list and focus on one or more of those things. Happiness, joyfulness, and relaxation — They can be elusive but reminders and mementos will help you get there. And help you focus
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@TalkAboutItOrgExcellent advice for someone newly diagnosed with #epilepsy - and just living with #seizures every day. https://t.co/x00Wp0oKxv
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@TalkAboutItOrgMore excellent advice from our community for people newly diagnosed with #epilepsy. https://t.co/yDPsrO9Mmx
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@TalkAboutItOrgIf someone you know has just been diagnosed with #epilepsy, what advice would you give them?
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@TalkAboutItOrgThis week is #NationalNursesWeek. Our health care teams are so important, and nurses are the heart of the team. We salute -- and thank from the bottom of our hearts -- all the amazing nurses who look after us and our loved ones. https://t.co/qoRKlw7z6K
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@TalkAboutItOrgReally looking forward to this..! Thank you @BrainandLifeMag! https://t.co/SIpRhz1ppK
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@TalkAboutItOrgThank you @EpilepsySWO for TalkingAboutIt https://t.co/pPNLTQ2Diz https://t.co/pACbCO7gYd
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@TalkAboutItOrgYou have heard us say this & we will never stop: If you do not have seizure control or the quality of life you deserve -- NEVER SETTLE! Keep seeking out options that are always on the horizon! This article is a good overview of latest & upcoming therapies: https://t.co/LWmoDWujn8
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@TalkAboutItOrg#HappyMothersDay to all the amazing moms out there. Our caregivers, our best friends, our confidants. What would we do without you?
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@TalkAboutItOrgHow are you at "self-management" of your #Epilepsy & #Seizures? Super important... “Self” does not mean alone! Engage the right friends, family, & caregivers to help you. Also, take a look at this amazing program called #PACES by our friends @CDCChronic https://t.co/Qcimusyf5s
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@TalkAboutItOrgSTRIKE BACK against your seizures with A NEW HOPE that you will USE THE FORCE of new medications and therapies in the pipeline toward THE RISE of seizure freedom. #MayThe4thBeWithYou https://t.co/2vgGp1mOyI
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@TalkAboutItOrg@ThePoppity @greggrunberg Thank you… for all you are doing as a mom and as an advocate. We appreciate you and all the amazing caregivers.
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@TalkAboutItOrgSTRIKE BACK against your seizures with A NEW HOPE that you will USE THE FORCE of new medications and therapies in the pipeline toward THE RISE of seizure freedom. #MayThe4thBeWithYou https://t.co/6SNAV99QRF
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@TalkAboutItOrg@EFNENY Awesome! Thank you! #MayThe4thBeWithYou
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@TalkAboutItOrg@BrainAblaze Devastating… thank you for sharing the story so we can all remember Lazar and keep his family and friends in our hearts.
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@TalkAboutItOrgOur friends at @SudepAction have helped create today’s #OnlineEpilepsyMemorialDay. We will hold a moment of silence and light a candle for all who have been lost from epilepsy and #SUDEP. May their memories be a blessing. https://t.co/ebm6F4HiGL
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@TalkAboutItOrg
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@TalkAboutItOrgLove this!! Thank you. @ovi8!! https://t.co/7WYzd1DFGO
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@TalkAboutItOrgRT @greggrunberg: No BS! Okay maybe a little. Loved being on @mrjasonbailey podcast. Check it out: https://t.co/W31otjg30E" target="_blank">https://t.co/W31otjg30E
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@TalkAboutItOrg@pitterpugesva @BrainAblaze @greggrunberg Healthy weight is always good. But the ketogenic diet for epilepsy is a special and specific medically curated diet for potential seizure reduction and control.
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@TalkAboutItOrgWe just got another stark and sad reminder that “invisible conditions”need more attention, more funding and at least as much awareness as more “visible conditions.” #RIPNaomiJudd Our thoughts and prayers are with her family and friends.
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@TalkAboutItOrgName one thing everyone needs to know about #epilepsy.
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@TalkAboutItOrgThis cannot be said enough, so we are saying it again: A person with #epilepsy is NOT CONTAGIOUS and cannot give epilepsy to another person.
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@TalkAboutItOrgThank you… and to your team, too! Doing what we do for this community is a huge honor … and a reminder that no one is alone! #EpilepsyAwareness https://t.co/bE6bZhBH7D
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@TalkAboutItOrg.@GregGrunberg met with some amazing guests this week. New podcast episodes coming soon. Catch up at https://t.co/NbHmKtbPOr
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@TalkAboutItOrgOne of the most common triggers for seizures is stress. One way we love to help reduce stress is to take a walk in the great outdoors. How do you help reduce stress? #EarthDay2022
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@TalkAboutItOrgThat absolutely sucks. So sorry to hear it. Stay strong. You’re going to get through this. https://t.co/RtRzgV2OCS
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@TalkAboutItOrgMake sure you check out the amazing and powerful new short film "Under the Lights." #EpilepsyAwareness https://t.co/0JIhrZmqQ5
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@TalkAboutItOrgThank you for the amazing and important and insightful responses. Keep them coming…
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@TalkAboutItOrg@flowcari Very well put and important comment. Thank you!
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@TalkAboutItOrgSpeaking of caregivers and the radio, what word or phrase would you want broadcasted to the world to describe your favorite caregiver? https://t.co/8B8jMKilNE
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@TalkAboutItOrgNot a surprising report, but important — #seizure frequency has a big impact on the risk of depression. Please NEVER, EVER, SETTLE if you are still having seizures. New treatment options are becoming available often. https://t.co/atzehtQzX3.
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@TalkAboutItOrgHere’s to all our best animal friends on #NationalPetDay. Hugs and pets to all the #seizure dogs and every dog and cat and other pet who gives us comfort and joy.
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@TalkAboutItOrgCelebrate #NationalSiblingsDay with this important message from @greggrunberg and @MiloVentimiglia https://t.co/RXyyb1sfWy
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@TalkAboutItOrg@Codykuiperclark We stand with you, Cody. Thank you for talking about your seizures… we hope you have a future without them, too.
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@TalkAboutItOrg@0ttrSpace … And thanks for all your help and support in helping end stigma.
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@TalkAboutItOrg@0ttrSpace So important! Thanks for the comment.
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@TalkAboutItOrg@LightningMonk Thank you! Keep talking about it. That’s one of the best ways we can all work together to get rid of this stigma!
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@TalkAboutItOrg@LightningMonk Diet and overall nutrition. Super critical. For everyone really. So glad it helps with your seizure control. Thanks for sharing the advice!
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@TalkAboutItOrg@tuggerthekink81 The community on here is unmatched in passion and commitment. Thank you for your advice and comments.
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@TalkAboutItOrg@DCClifford So very true!
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@TalkAboutItOrgToday is #WorldHealthDay. What’s the most important thing you do to help your health?
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@TalkAboutItOrgNew episode! Great series! Thank you @greggrunberg and @JazzPharma for helping highlight the importance of caregivers everywhere. https://t.co/CgeCRJMEqc
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@TalkAboutItOrg@roslyn_nicole Yes they do. Sorry you are sore but glad you are home and trying to relax.
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@TalkAboutItOrg“There was no trauma; it just happened...No one knows why.” More than 50 percent of #epilepsy has no known origin. But there are lots of encouraging treatment options. For example, here is 46-year-old Aaron Alejos' story of his diagnosis and brain surgery. https://t.co/fuRu97DX8S
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@TalkAboutItOrgToday is #WorldAutismAwarenessDay. Many people live with both #Autism and #Epilepsy. To learn more about the connection, check this out from our friends at @CureEpilepsy: https://t.co/KsbMXVbx2W
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@TalkAboutItOrg#epilepsy and #seizures should never stop you from reaching for your fullest potential. Just ask Noah Adams, a Michigan teenage wrestling champion. https://t.co/cSjpbWECT7. (thank you @TomTV23 for talking about Noah’s story in @michigans_thumb)
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@TalkAboutItOrgOur thoughts and best wishes are with #BruceWillis as he retires from acting. Here is a good summary from @nytimes about #aphasia. https://t.co/5hOW78vQrc
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@TalkAboutItOrgThank you to @UBuffalo student (& sr. news editor) Jack Porcari for talking about his #epilepsy in @UBSpectrum: "I have finally accepted that it is OK to have a different rhythm in life and take care of myself how I see fit, despite what others may think." https://t.co/GAKuR40kSH
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@TalkAboutItOrg1 of many takeaways from yesterday’s @DrDrewPodcast — Caregivers need to make sure they look after themselves, too. Like @greggrunberg said, it’s like when the airplane attendants tell you to put on your mask first before helping others - make sure you are good to help loved ones
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@TalkAboutItOrgThank you @drdrew and @greggrunberg for an excellent episode of the Ask Dr. Drew podcast. All about #epilepsy and #seizures and so much more… https://t.co/lRUZHMjJap
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@TalkAboutItOrgRT @greggrunberg: Hey #Caregivers, I’m talking about my new #TheCareGiverSeries on @DrDrewPodcast w/@drdrew today at 3PM LIVE! Join us! https://t.co/ZDkFzILR9y
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@TalkAboutItOrgI’m sure Greg will ask @drdrew on @DrDrewPodcast today at 3pm LIVE! https://t.co/vMNGeikJ6b https://t.co/10OvQQBJZN
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@TalkAboutItOrgRT @greggrunberg: TODAY AT 3PM LIVE!!! https://t.co/j9lbSZAsfl" target="_blank">https://t.co/j9lbSZAsfl
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@TalkAboutItOrgMondays… ugh, can be so stressful. What do you do to help minimize stress? Fresh air and a quick walk always helps. Let’s share tips.
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@TalkAboutItOrg@BrainAblaze @roslyn_nicole Thank you! As are you… it’s an honor to serve such an amazing and deserving community.
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@TalkAboutItOrgCODA!!
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@TalkAboutItOrg@roslyn_nicole @BrainAblaze Thank you!
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@TalkAboutItOrgHuge congratulations to Troy Kotsur. His acceptance speech was so powerful. A great moment for the disability community. https://t.co/iU9Xte1LEu
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@TalkAboutItOrg❤️❤️❤️ https://t.co/bWxt4dVjyZ
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@TalkAboutItOrgRT @greggrunberg: At https://t.co/cLA0xUZJBk" target="_blank">https://t.co/cLA0xUZJBk & @TalkAboutItorg EVERY day is #PurpleDay https://t.co/hbpeJiXuur" target="_blank">https://t.co/hbpeJiXuur
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@TalkAboutItOrgSo excited for this! Under the Lights is an amazing short film! https://t.co/ICsy3IKJfF
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@TalkAboutItOrgWho is your #epilepsy hero?
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@TalkAboutItOrg#HappyPurpleDay! But as we encourage to all — every day needs to be a purple day. #EpilepsyAwareness
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@TalkAboutItOrgThank you to former Madison, Wisconsin TV anchor @newssarah76 for talking so passionately about #epilepsy. Ten years after an on-air #seizure, she continually helps attack stigma. https://t.co/bi0jbD3xnd
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@TalkAboutItOrgRT @greggrunberg: THIS. IS. EVERYTHING !https://t.co/CNw0hQjbGd" target="_blank">https://t.co/CNw0hQjbGd
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@TalkAboutItOrgRT @greggrunberg: Our son Jake is amazing. Has a great job at a production company and is a second-degree black belt. Oh and ladies, he’s single! https://t.co/nrJH4iE99W https://t.co/te29enRvsx
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@TalkAboutItOrgToday is #NationalPuppyDay. We hear lots of stories about pups who live with seizures but are getting great care from their amazing humans. So, here’s to all the amazing pups out there.
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@TalkAboutItOrgSome great insightful comments on names and why they are used. As we know, names have power. Using words that can help take the edge off what is happening in a #seizure without ignoring importance of aid, care and treatment can be valuable. Keep the comments coming. Thanks!
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@TalkAboutItOrgThere have been lots of different names used for #seizures — such as fits or spells. We also know some folks name their seizures to make them less clinical sounding. Have you any naming stories?
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@TalkAboutItOrgRT @omar_danoun: Intense #Anxiety can be a #Seizure in #Epilepsy... It usually progress to other symptoms like pausing. #EpilepsyAwareness #NeuroTuber #NeuroTwitter https://t.co/wpBVcrurFg
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@TalkAboutItOrg@Cappel4M Understandable reaction from your husband.
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@TalkAboutItOrgRT @TiffanyKairos: A lot of disabilities are invisible. Your reaction to them isn't.
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@TalkAboutItOrgNew science and new hope for our military heroes who have suffered from traumatic brain injury (TBI) and post-traumatic #epilepsy. https://t.co/PdjaRYQ1c9
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@TalkAboutItOrg@Cklingmn_2697 Awesome news…. And awesome hashtag!
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@TalkAboutItOrgWho was the first person outside your family that you told about your seizures? Was it your best friend? Teacher? Colleague? Date?
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@TalkAboutItOrgRT @greggrunberg: My son’s medications WITH insurance are $$$$$! We’re doing an episode on navigating insurance, pharmacies, generic vs name brand, etc on my podcast TALK ABOUT IT https://t.co/oEA2EuFbGw
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@TalkAboutItOrg@carrie_mosher There sure is. But we are all coming together to change that.
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@TalkAboutItOrg@LeghornFh Siblings…
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@TalkAboutItOrg@LeghornFh Yikes! That’s quite a question. Amazing what people don’t know. That’s why we are all here helping each other. I am sure you straightened out their thinking. Thanks for sharing.
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@TalkAboutItOrg@DCClifford Wow…. Just wow. How did that conversation go? I hope the university-educated person realized they had a lot to learn.
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@TalkAboutItOrg@annavkraft Very true. And thank you for sharing. Do relatives get the answer once you explain it then? Or are they stubborn about understanding?
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@TalkAboutItOrgWhat's the most surprising question you have ever been asked about your or your loved one's #seizures?
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@TalkAboutItOrgThank you, @CodyBrundage185, for talking about #epilepsy on behalf of your daughter, and the entire epilepsy community, after your big win this weekend! And thank you to the @ufc for creating your amazing purple armband and being so supportive, too! https://t.co/ZCSSWLkXRE
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@TalkAboutItOrgToday, on the first day of International #BrainAwarenessWeek, here is @drdrew on why it is so important to talk about #epilepsy and #seizures. https://t.co/WXikg4eSrk
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@TalkAboutItOrgIt’s #NationalNappingDay, but for those with #Epilepsy a nap can be essential. Do you find it helpful? Let’s #TalkAboutIt 5 reasons you should take a nap https://t.co/rrdcNB2afY
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@TalkAboutItOrgLearning seizure first aid could not only save your life but the life of someone you love. https://t.co/pPNLTQ2Diz https://t.co/nZIf4GTuME
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@TalkAboutItOrgRT @BrainAblaze: Most people think all people with #Epilepsy have #seizures that include falling and convulsions. There are multiple types of seizures. This checklist does a great job describing some of the things our bodies may do during a seizure. #EpilepsyAwareness https://t.co/yvej2vgwmX
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@TalkAboutItOrgHow great is THIS?! https://t.co/lLZZpLXV9d
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@TalkAboutItOrgRT @greggrunberg: That people think they know everything about seizures and epilepsy meanwhile they don’t know shit. Educate yourself. Visit: https://t.co/cLA0xUZJBk https://t.co/Jd51s7fKqZ
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@TalkAboutItOrgGreat Interview with @greggrunberg on his family's history with #epilepsy and #seizures -- and our origin story at Talk About It. Thanks to @BrianAltounian and @iamshawnfrancis for their amazing JUST TWO DADS podcast -- available everywhere. https://t.co/T5f5mASLOe
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@TalkAboutItOrgAbout 250,000 people in Ukraine have #epilepsy. Anti-seizure meds are running low. The war is having devastating impact. We salute the work of @ilaeweb & @ibesocialmedia for all they are doing to help. https://t.co/wCNmHM8rNy #IStandWithUkraine️
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@TalkAboutItOrgToday, #InternationalWomensDay, we salute and give deepest love and thanks to every mom, sister, daughter, wife, aunt, friend, etc. … You who help make life worth living. You are pillars of strength and role models for us all.
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@TalkAboutItOrgYoga? Music therapy? Can they dramatically help with #seizures? The @ClevelandClinic is aiming to find out… https://t.co/IRWVItipou
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@TalkAboutItOrgRT @greggrunberg: See you SUNDAY MORNING @RoseBowlStadium #RoseBowl #EpilepsyWalkLA #EpilepsyLosAngeles https://t.co/t3cJ6d1wxc" target="_blank">https://t.co/t3cJ6d1wxc
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@TalkAboutItOrgCan you have #epilepsy if you have #autism? What you need to know.... https://t.co/aF544qiZ6Z
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@TalkAboutItOrgVR and video games to help teens living with #seizures? Awesome! https://t.co/jvWwvQqOcY
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@TalkAboutItOrgTERMS MATTER: “Special Needs” “Handicapped” “Disabled” “Challenged”What do you prefer? Why? What offends you? Why?
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@TalkAboutItOrgFamous abolitionist and women's rights icon #HarrietTubman suffered from temporal lobe #epilepsy as a result of an injury when she was 12. DON'T EVER SAY someone living with #seizures can't accomplish great things. EVER. #WomensHistoryMonth https://t.co/9iBboEXAdS
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@TalkAboutItOrgIt’s #EpilepsyAwarenessMonth in Canada. Thank you @LorrieForseth for your voice… and to all our Canadian followers and friends for talking about it! https://t.co/W364okCtoL
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@TalkAboutItOrg@LorrieForseth @greggrunberg @jsirven Yes. We will put that on our list to talk about!
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@TalkAboutItOrgTime for @greggrunberg to put YOUR toughest #epilepsy and #seizures questions to one of the nicest guys out there -- Dr. Joe Sirven (@jsirven). Available now wherever you grab your podcasts and at https://t.co/4trDMw0y56. https://t.co/ZiGbc0K8w4
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@TalkAboutItOrgRT @BrainAblaze: With an estimated 65 million people worldwide, #Epilepsy is not rare, but types of epilepsy like Dravet Syndrome and Lennox-Gastaut Syndrome (or LGS) are. #RareDiseaseDay #EpilepsyAwareness
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@TalkAboutItOrg#RareDiseaseDay is a Global Event. We all need to pay attention. https://t.co/oYf2SOk63S
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@TalkAboutItOrgRare Diseases A to Z ... 7,000 of them! Hey, @US_FDA! Many of these do not have drugs approved by you. What's up with that? #RareDiseaseDay https://t.co/DkgUOkzCaz
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@TalkAboutItOrgToday is #RareDiseaseDay.... Many types of #epilepsy are rare. Here's a shoutout to our friends @RareEpilepsy, who help make a difference by focusing on clinical trials and research. Have you looked into clinical trials? https://t.co/zqEwlnSwgU
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@TalkAboutItOrgRT @TheNotoriousEEG: Spread the word 🗣 #RareDiseaseDay https://t.co/4QrQ9uDkNm" target="_blank">https://t.co/4QrQ9uDkNm
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@TalkAboutItOrgToday is #RareDiseaseDay Thank you to the National Organization for Rare Disorders (NORD) @RareDiseases for supporting over 25 million Americans living with 7,000 rare diseases. https://t.co/YLKS406IhG
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@TalkAboutItOrg@BrainAblaze @greggrunberg So true. Like our followers… doing great things!
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@TalkAboutItOrg@JJapgar Excellent advice! Thanks for sharing.
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@TalkAboutItOrg@Jillyjigs306 How long have you had it? Did you get it through your doctor?
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@TalkAboutItOrgWe stand in solidarity for the people of a democratic and free #Ukriane.
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@TalkAboutItOrg@Jillyjigs306 We love everything @empatica does with their devices. Super impressive!
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@TalkAboutItOrgRT @greggrunberg: NOW OUT: #TheCareGiverSeries on YouTube / https://t.co/cLA0xUZJBk" target="_blank">https://t.co/cLA0xUZJBk / Podcast: TALK ABOUT IT! https://t.co/sNvJyx6imG" target="_blank">https://t.co/sNvJyx6imG
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@TalkAboutItOrgTake a few moments as we head into the weekend to relax and listen to some cool Hollywood folks talk about #epilepsy and #seizures. https://t.co/kbDeVwmD8G
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@TalkAboutItOrgRT @TalkAboutItorg: New Jersey & Kentucky have new legislation. The Seizure Safe Signage bill requires all businesses to post #SeizureFirstAid signs in areas visible to employees & general public. Congrats to the team interviewed in our TALK ABOUT IT pod available everywhere. https://t.co/NbHmKtbPOr https://t.co/IYECSXUact
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@TalkAboutItOrgIn honor of Two's Day (2/22/22), what are two of your favorite things? Two of ours: old classic cars and new amazing ideas.
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@TalkAboutItOrgNew Jersey & Kentucky have new legislation. The Seizure Safe Signage bill requires all businesses to post #SeizureFirstAid signs in areas visible to employees & general public. Congrats to the team interviewed in our TALK ABOUT IT pod available everywhere. https://t.co/NbHmKtbPOr https://t.co/IYECSXUact
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@TalkAboutItOrgThis…. And also https://t.co/s6fnJnVPGy — Very important to know these basic steps to help potentially save lives. Thanks! https://t.co/dcOBpNcmEX
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@TalkAboutItOrgThis is a great organization … based on an amazing city and doing fantastic #epilepsy, #seizure and #SUDEP awareness and research nationwide. If you want to run the @ChiMarathon for a great cause, here you go…. https://t.co/gYBuRl0ZdP
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@TalkAboutItOrgExciting news from our friends @nyulangone & @NIH. The medical center has been given a grant to develop an implantable monitoring device to collect previously unobtainable data on how the brain behaves moments before and during a #seizure. https://t.co/UUFL939uUf. #epilepsy
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@TalkAboutItOrg@GuyWithEpilepsy @abilitymag @greggrunberg @starwars @HonTonyCoelho @RickYaeger @EpilepsyFdnLA @Comic_Con @NY_Comic_Con @ThatKevinSmith @CharlieFndation Great to hear!
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@TalkAboutItOrgHere’s why we do what we do. Read this fun and informative conversation with the guy who started it all: @greggrunberg. Thank you, @abilitymag! https://t.co/nc6dqKyEeM
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@TalkAboutItOrgWe have some amazing new episodes of our podcast you won't want to miss coming soon... with very special guests. Catch up now wherever you grab your podcasts and at https://t.co/NbHmKtbPOr In the meantime, let us know what topics you want to see covered in future episodes...
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@TalkAboutItOrgYesterday’s #EpilepsyDay reminded us again just how strong, compassionate and caring our community can be — especially when coming together to help and support others. We are proud to know you and to stand with you. https://t.co/pPNLTPL2r1.
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@TalkAboutItOrg#EpilepsyDay is coming to an end. But for us, every day is epilepsy day. We are privileged to work closely with everyone in the community throughout the year. https://t.co/pPNLTPL2r1
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@TalkAboutItOrgRT @greggrunberg: Thanks again @LisaKudrow #InternationalEpilepsyDay https://t.co/yNmfsZcy45" target="_blank">https://t.co/yNmfsZcy45
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@TalkAboutItOrgHey... its @EthanSuplee and @greggrunberg. Doesn't get better than that! TALK ABOUT IT podcast is available everywhere including https://t.co/NbHmKtbPOr #EpilepsyDay https://t.co/Zdbt1KMOMs
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@TalkAboutItOrg❤️ THIS! https://t.co/d27PFGJenB
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@TalkAboutItOrgRT @greggrunberg: Show some ❤️ and RT to ALL on this #EpilepsyDay! https://t.co/tucx8jFlQ3" target="_blank">https://t.co/tucx8jFlQ3
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@TalkAboutItOrgEpilepsy and its stigma impacts people around the world. On this International #EpilepsyDay, we share this powerful story from Doctors without Borders (@MSF_USA) in Liberia. https://t.co/WTO15kzi3y
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@TalkAboutItOrgA group of amazing families have come together to help create Seizure Smart Schools around the USA. Hear their story and how you can help on our podcast, available everywhere and at https://t.co/NbHmKtbPOr #EpilepsyDay https://t.co/gTd0aJRy1E
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@TalkAboutItOrgOur friends at @epilepsyaction have some fascinating information about why St. Valentine is the patron saint of #epilepsy. We wish you a very Happy Valentine's Day. Remember to tell all of the special people in your lives how much they mean to you. https://t.co/HGCYvWmYUX
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@TalkAboutItOrgTwo amazing #epilepsy advocates, @djhapa and @greggrunberg, share their inspirational and motivational stories on our podcast series. Find this episode and all our podcasts at https://t.co/NbHmKtbPOr #EpilepsyDay https://t.co/kf4wXi2XYN
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@TalkAboutItOrgToday is International #EpilepsyDay. Here Iliya Fakour Rashid, a teenager from Iran, tells us how epilepsy has affected his life, and how learning to understand the disease has helped him think of it as a friend. https://t.co/y0HCP4dM9k
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@TalkAboutItOrgLots of us are watching football today, so we thought it would be good to share some wisdom from our good friend @MiloVentimiglia on playing sports (and also some key words on fighting bullying, too). #SuperBowl https://t.co/NMWxDx13MV
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@TalkAboutItOrgAs we approach International #EpilepsyDay on Monday, we wanted to share this advice from the great Jane Seymour OBE -- Dr. Quinn herself (or for all of us James Bond @007 fans, Solitaire). https://t.co/KMDzNWvIJr https://t.co/chVWzKBMJQ
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@TalkAboutItOrgGlobal stories this weekend before International #EpilepsyDay on Monday. Scarlett Paige from Australia talks about the stigma around #epilepsy and #seizures -- including misconceptions about not being able to work. https://t.co/J3R3fzo3T1
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@TalkAboutItOrgSharing more stories from around the world as we approach #EpilepsyDay. Lorraine Lally from @epilepsyireland and the International Bureau for Epilepsy Youth Team talks about women and #epilepsy, including hormonal issues while living with #seizures. https://t.co/LINJ19iUMH
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@TalkAboutItOrgSharing stories from around the world as we approach #EpilepsyDay on Monday. Nina Mago from Uganda talks about the impact of #Epilepsy's stigma on her life, in her country, and around the world. All the more reason for everyone to talk about it! https://t.co/vioSHerV1q
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@TalkAboutItOrgMonday is #EpilepsyDay. We start the weekend by asking an important question with our friends @ChrisGorham and @jsirven: Who has #epilepsy and #seizures? https://t.co/slXYXnf4I3
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@TalkAboutItOrgOur friend @bobsaget died tragically of head trauma. He went to bed after hitting his head and never woke up. Please watch Dr. Gupta explains what to do if you sustain a serious head injury. #TalkAboutIt https://t.co/WRq4idoLmp
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@TalkAboutItOrgEver wonder what happens when @kevinpollak and @greggrunberg get together for an afternoon? https://t.co/pPNLTPL2r1 https://t.co/Gy6MYhXLlN
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@TalkAboutItOrg@staytrueking Amazing advice. Thank you. And yes. Each day is different just as each diagnosis is different. Another word here then is ‘complicated.’
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@TalkAboutItOrgQUESTION: When is the right time to discuss your #seizure disorder with a potential mate? First date? Wait a while?
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@TalkAboutItOrg@SukieKoluki Excellent. And yes. So much bravery throughout the community. Thank you.
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@TalkAboutItOrgRT @greggrunberg: Congresswoman Lizzie Fletcher Nominates Dr. Peter Hotez and Dr. Maria Elena Bottazzi for Nobel Peace Prize CONGRATS to my pal @PeterHotez !!!! Well deserved! https://t.co/j4WoT5piNL
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@TalkAboutItOrg@StevenDorsher Very well said.
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@TalkAboutItOrg@LightningMonk Thank you for the kind words. We appreciate you … and everyone in the community. We lift each other up.
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@TalkAboutItOrg@LightningMonk Great word. Important word. Thank you!
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@TalkAboutItOrg@itsyahgirkiana Fantastic word. And yes!
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@TalkAboutItOrgThinking of words that inspire and remind us of the #epilepsy community as a whole. Here’s one of many: Resilience. What’s a word you would add?
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@TalkAboutItOrgRT @greggrunberg: In episode 1 of #TheCareGiverSeries, I meet Jon, whose son lives with #epilepsy. Besides being supremely cool dads, Jon and I also bonded over the hardships, victories, and hopes that come with being a caregiver. Watch here: https://t.co/1E37nyksNH #sponsored by @JazzPharma https://t.co/oFNiymfr1V
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@TalkAboutItOrgRT @greggrunberg: Of all the amazing shows I’ve starred in, my newest show – #TheCareGiverSeries – is the one I’m most proud of. Link coming TOMORROW! https://t.co/BewDBNlvyv
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@TalkAboutItOrgRT @greggrunberg: We are on our way. Thank you for those who have jumped in. Please keep the support coming. Join team #TalkAboutIt. Walk with us. Or donate in support. THANK YOU! https://t.co/gQ8hlvlNK0
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@TalkAboutItOrgWhat’s the best advice you have ever received?
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@TalkAboutItOrgThank you, Greg. We plan to be doing more of these soon with you and other heroes https://t.co/CiBP9Wawan
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@TalkAboutItOrgRT @greggrunberg: #ICYMI we had an amazing conversation about #seizures and #epilepsy. You can listen to it here. Or look for clips of it on my podcast “Talk About It“ https://t.co/ARucWIcP9t
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@TalkAboutItOrgRT @greggrunberg: Thinking about starting a #TwitterSpaces in a bit to discuss post #seizure effects on the body like ringing in the ears, exhaustion, dizziness, etc. Who want to jump in?
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@TalkAboutItOrgRT @AmericaEpilepsy: Learn more about Seizure Safe School legislation across the country on the latest Talk About It Podcast with Greg Grunberg. https://t.co/hbxCM6E8eY https://t.co/goR2bOQoqn
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@TalkAboutItOrgRT @greggrunberg: https://t.co/qXGY8gGm0C" target="_blank">https://t.co/qXGY8gGm0C
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@TalkAboutItOrgRT @greggrunberg: Once again Dr. Joe Sirven @jsirven absolutely crushed this interview for our podcast “Talk About It“. Thank you for your wealth of knowledge & for communicating things in a way we can all understand. Catch up now and look for Joe’s ep. coming soon! https://t.co/pJbyndTecc
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@TalkAboutItOrgRT @greggrunberg: If you could ask one of the top doctors in the world of neurology and seizure disorders 1 question, what would it be? About to record a new episode of my podcast ‘TALK ABOUT IT’ with very special guest @jsirven REPLY with your question NOW!
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@TalkAboutItOrgNews: A brain implant that helps control severe epilepsy in adults may do the same for children who suffer from unrelenting seizures, new research suggests. https://t.co/EtdlDSBPPZ
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@TalkAboutItOrgWe hear many different and important answers to this question, curious about your answer: In your opinion, what's the most important thing someone should know about living with #seizures?
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@TalkAboutItOrgRT @greggrunberg: Follow @TalkAboutItorg https://t.co/Yy7k3qHKwN" target="_blank">https://t.co/Yy7k3qHKwN
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@TalkAboutItOrg#GetBOOSTED! It can save your life! Boosters provide the best protection against Omicron variant, large CDC studies show https://t.co/fk23aGCLBY
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@TalkAboutItOrgRT @greggrunberg: MUST SEE NEW SHOW!#AsWeSeeIt Watch THIS Trailer https://t.co/vZd7j6ZN4Z" target="_blank">https://t.co/vZd7j6ZN4Z
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@TalkAboutItOrgRT @TalkAboutItorg: OUT NOW! NEW EPISODE! https://t.co/MXY1PEinjV" target="_blank">https://t.co/MXY1PEinjV
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@TalkAboutItOrgOUT NOW! NEW EPISODE! https://t.co/MXY1PEinjV
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@TalkAboutItOrgAlready taking #CBD for #seizures? How have you reacted to COVID? https://t.co/QKJiKvRuLb
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@TalkAboutItOrg“If you can’t fly then run, if you can’t run then walk, if you can’t walk then crawl, but whatever you do you have to keep moving forward.” - Martin Luther King, Jr
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@TalkAboutItOrgTalking about how wonderful @TomBrady is today!!! https://t.co/MlPhjpEk8y
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@TalkAboutItOrgRT @BrainAblaze: Uploading a video of a person having a #seizure without their explicit consent is never OK. #EpilepsyAwareness
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@TalkAboutItOrg@iamnoone1518 In some cases it’s very realistic to think that. Diligence and vigilance is always needed to maintain Seizure freedom.
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@TalkAboutItOrgHow does it really make you feel when people use the term “seizure free?”
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@TalkAboutItOrgFantastic! https://t.co/oogbVv9Tm6
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@TalkAboutItOrgDONATE BLOOD if you can. https://t.co/IPoVqRLp7e
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@TalkAboutItOrgHUGE congrats to our pal and supporter @MiloVentimiglia on his well-deserved star on the #HollywoodWalkOfFame https://t.co/ieZxwWma0O
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@TalkAboutItOrgSharing a favorite quote: “Promise me you’ll always remember: You’re braver than you believe, and stronger than you seem, and smarter than you think.” ...From Winnie-the-Pooh author A.A. Milne.
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@TalkAboutItOrgRT @greggrunberg: “We cannot cure the world of sorrows, but we can choose to live in joy” - Joseph Campbell
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@TalkAboutItOrgRT @Kellie_Martin: Good morning 🌞 I see you doing the very best you can. Thank you!
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@TalkAboutItOrgThere is too much ignorance in the world. We are going to work together, all of us, to end it -- especially around chronic conditions like #epilepsy. A good example of where ignorance must end: seizure recognition and knowing proper first aid. https://t.co/s6fnJnVPGy. RT
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@TalkAboutItOrg@DCClifford @judeaa @BrainAblaze Thank you, we agree... talking is a key first step to action and to change.
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@TalkAboutItOrgThe story of a pig, Cronutt the sea lion, and a potential new treatment for #epilepsy. https://t.co/88uupIK2gU
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@TalkAboutItOrgHuge well-deserved congrats to our friend and American hero @PeterHotez !!! Thank you for ALL that you do. https://t.co/TpFh5lT975
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@TalkAboutItOrgWe know far too many people who have settled for #seizures. Don't do that! Not acceptable! There are many options, more all the time. If you had a friend who was ready to give in, we bet you would push them to never give up. That's what we are going to do, too. Keep going!
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@TalkAboutItOrgWe can #TalkAboutIt… BUT, if the SCIENCE, this story of 65 days in a coma, and the 5,464,223 people that have DIED from COVID-19 doesn’t convince you to GET VACCINATED, good luck to you. https://t.co/L8gvJYi7sa
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@TalkAboutItOrgIt’s all about CONTROL in #2022. You can’t control the stupidity and ignorance of others. But you CAN control how good YOU are to yourself. #TalkAboutIt
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@TalkAboutItOrgSo right. If you have to use a seizure or epilepsy to make a joke then maybe you’re not that funny in the first place. #BeSmarter https://t.co/ofxSYFm5to
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@TalkAboutItOrgAs we begin this new year, we commit to talking more about #epilepsy and other chronic conditions ... to help raise awareness and improve public education about the importance of finding the right treatments and striving for living lives to the fullest. Thank you joining us.
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@TalkAboutItOrgWishing everyone a safe, happy, healthy new year... For all of us!
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@TalkAboutItOrgRT @greggrunberg: More JOY. More LOVE. More LAUGHTER. Let’s all #BeLikeBetty in #2022 RT https://t.co/dqDfutu2cl" target="_blank">https://t.co/dqDfutu2cl
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@TalkAboutItOrg2021: This was a rough year. But let’s close it out with some joy. Let’s each pick 5 random names from our contacts list and let them know we are thinking about them and hope to connect more in 2022. We will create smiles and remind ourselves and others that none of us are alone.
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@TalkAboutItOrgIt’s going to get better. Hang in there. You’re not alone. https://t.co/gZr2c9CxJE
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@TalkAboutItOrgSome of the greatest people we have ever met live with a chronic condition. Their strength of character and their perseverance are inspirations every single day.
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@TalkAboutItOrgPlease make sure you have someone to talk to about your #epilepsy — someone you trust when you need to talk. This is also true for #caregivers. Please make sure you have a trusted friend or fellow caregiver you can talk to about it. You are not alone. None of us are alone.
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@TalkAboutItOrg@gwencrutt @disney__tasthic Usually seizure impact from photosensitive epilepsy occurs at the time of the trigger. Although a headache or other lingering aspects can go longer or be after the initial triggering circumstance.
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@TalkAboutItOrgIf you have seizures, don’t look back… keep moving forward. Step by step. You have allies. You have friends. You have options. Science is always learning more. Talk to your health care team. Turn any despair into hope. Always hope. And action. We stand with you.
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@TalkAboutItOrgAll we want for Christmas is for everyone to be safe, happy and healthy. So thankful for all of us coming together to help support and encourage each other to reach our fullest potential. Thank you for being a part of our family. Have a merry, joyous holiday!
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@TalkAboutItOrgMake sure you have everything you need for holiday travel and for being with family and friends. Make a list and check it twice. Meds? Masks? Good cheer? Fun gifts? Your sense of humor? Enjoy the holidays everyone!!
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@TalkAboutItOrgWe are all seeing the latest news about the COVID surges. Thought it would be a good time to share this recent article. Remember: Get vaccinated! Get boosted! https://t.co/LPDwwPtDlp
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@TalkAboutItOrghttps://t.co/pPNLTQ2Diz has great first aid videos as well. https://t.co/sL1MXYdEyz
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@TalkAboutItOrgJust let them know you’ve got their back. They’re not alone in this. https://t.co/qecblJTdBZ
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@TalkAboutItOrgRT @disney__tasthic: Warning: There’s a lot of flashback lights in Spider-Man No Way Home, so if you’re at risk of seizures there’s a heads up.
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@TalkAboutItOrgMedical marijuana and autism: 'I'm getting my boy back,' mom says https://t.co/6ooPAlA0TQ
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@TalkAboutItOrgRT @greggrunberg: A huge thank you to the uninformed and Ill-advised Anti-Vaxers. No lines at the pharmacy to get a booster. So easy & free. Appreciate it guys.
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@TalkAboutItOrgRT @TimFinnigan12: Honored to be on the @TalkAboutItorg podcast, raising awareness for #Epilepsy ! Thank you @greggrunberg & @klowenberg for having me on! #epilepsyawareness #talkaboutit @EpilepsyFdn https://t.co/tLCStbOGDs
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@TalkAboutItOrgThe Jerk, Blazing Saddles, Airplane, Caddyshack, Bug Ass Spider! https://t.co/YGMsJG06oo
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@TalkAboutItOrgSTAND UP FOR YOURSELF! It’s never as bad as it seems. https://t.co/I1bgKWy7nw
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@TalkAboutItOrg@simon12265 Interesting and understandable comment from your neurologist. Glad the aura warnings help you in that way.
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@TalkAboutItOrg@Wine_Rhine Thank you for sharing. Auras are different for everyone. Glad to hear the auras are properly diagnosed and that yours occur at least some of the time to give you enough warning times.
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@TalkAboutItOrgIn 1999, we met a 12-year-old who had just become the National “Winning Kid” for raising #epilepsy awareness. @TimFinnigan12 has never stopped. Hear his amazing and inspiring story in our latest podcast episode, available everywhere now. https://t.co/WL8pvOaCU1
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@TalkAboutItOrg@ErinZirpolo Thanks for sharing. Amazing health care team at NYU!
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@TalkAboutItOrg@ErinZirpolo Excellent advice! Thank you!
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@TalkAboutItOrg@ErinZirpolo Thank you for sharing your story. Too many people still need to learn what epilepsy is and is not. We appreciate you sharing the bad and the good to give much needed perspective. We have lots more to do.
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@TalkAboutItOrg@ErinZirpolo So glad the magnet helps.
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@TalkAboutItOrgIt would be great if everyone could get a warning right before they have a #seizure. But it doesn’t happen all the time. And it doesn’t happen to a lot of people. Do you get a warning? Do you feel an aura? That feeling in your stomach right before it happens?
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@TalkAboutItOrgSpicy food? Lack of sleep? Paying rent? Finding a date? Losing weight? Stress? Fatigue? Everyone has different triggers that can bring about a #seizure. What are some of yours? https://t.co/og3etO9ffE
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@TalkAboutItOrgHolidays, YAY! Holidays, STRESS! Can’t have one without the other it seems. Sometimes the best gifts we get and give are ones we give ourselves. Not driving yourself nuts sounds like a GREAT gift! Especially if stress is one of your #seizure triggers. Be naughty not nice. Relax!
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@TalkAboutItOrgYou’re not a kid anymore. It’s time to put on your big pants and get a real adult doctor. What are you gonna do? Who are you going to see? How do you find the best adult doc for YOU? First of all, read what these guys have to say: https://t.co/Kzq8eSApuQ
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@TalkAboutItOrgTransitioning from pediatrics to adult care can be tricky, regardless of the health condition. It’s important to build a plan well before that time comes. Here are some resources that can help! https://t.co/Kzq8eSApuQ
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@TalkAboutItOrgTeachers are heroes. But they are overwhelmed and overworked When one of their students has a disability it can just multiply that exponentially. What’s been your experience with teachers understanding your #Epilepsy and or disability?
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@TalkAboutItOrgCollege is hard enough- living away from home can be a challenge for people living with #epilepsy. What do you do to keep yourself safe and how do you talk about it with others?
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@TalkAboutItOrgThe world of #Epilepsy is changing all the time. New medicines, new therapies, new knowledge of just how the brain works. When you hear about something new do you talk about it with your doctor? Do you have that kind of relationship with your health care team?
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@TalkAboutItOrgSelf-driving cars… will they be a game changer for people with #epilepsy and other disabilities? https://t.co/iL5PGKuo7F
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@TalkAboutItOrgOur hearts and our prayers go out to the family, friends, and fans of Demaryius Thomas.
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@TalkAboutItOrgInspirational stories from amazing people. Make sure you take some time to listen… the power of the human spirit is in every episode. #EpilepsyAwareness https://t.co/dwabBf8S0z
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@TalkAboutItOrgNews: Research reveals a common cause for seizures and memory problems in epilepsy. https://t.co/4ybwHxDsrC
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@TalkAboutItOrgThere are many types of #seizures besides the one most people think about — falling and convulsing. Here is a link from our friends at the CDC about seizure types. Do you have a story to share about explaining seizures or #epilepsy to friends or family? https://t.co/GMIrQUBvgJ
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@TalkAboutItOrg.@klowenberg here: I rewatched a fun film this weekend — Galaxy Quest. The movie’s catch phrase reminded me of many of my amazing friends in the #epilepsy community: “Never Give Up! Never Surrender!” If you are still having seizures, please keep seeking new therapy options!
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@TalkAboutItOrgRT @AmyLeeEV: Donate to @EpilepsyFdn to help those diagnosed to overcome the challenges of living with epilepsy. I’ve partnered with @winwithfandiem & @Bandsintown to offer one bidder my signed Roland stage keyboard 🎹 alongside a personalized message! #GivingTuesday https://t.co/Ssl3j8E4wo https://t.co/jzSVFoJY2x
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@TalkAboutItOrgCongratulations to Gardiner Lapham for receiving this well-deserved award @AmEpilepsySoc. Her leadership (along with all the leaders at @DannyDidOrg) are helping change the world for everyone living with epilepsy — and honoring families of those who have lost loved ones to #SUDEP https://t.co/5pig58t63P
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@TalkAboutItOrgAs we are now full swing on the holiday shopping and party season, (sometimes called the ‘silly season’), please keep in mind any of your seizure triggers. Here’s some advice with a little help from our buddy @SeanHayes. https://t.co/og3etO9ffE
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@TalkAboutItOrg@Mike_Wuerthele Thank you for sharing.
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@TalkAboutItOrg@CaerwynFarm Thank you for sharing. We are so sorry for your friend’s loss.
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@TalkAboutItOrgThis is Infantile Spasms Awareness Week (Dec. 1-7). Infantile spasms (also called IS) are also known as West syndrome. These seizures may be subtle and confused with other normal baby behaviors or colic. Diagnosing IS early is crucial! To learn more, visit https://t.co/W9qX4vkYjn
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@TalkAboutItOrgWe add our voice to the global support for #WorldAIDSDay, with this year's theme of "Ending the HIV Epidemic: Equitable Access, Everyone’s Voice." To learn more, and how you can help raise your voice, please visit https://t.co/PVkqSQFsV9
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@TalkAboutItOrg@ruby73667817 Hi Ruby. Please send us a DM and we can look at finding your specific resources in your area.
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@TalkAboutItOrgOn this last day of #EpilepsyAwarenessMonth 2021, we rededicate ourselves year-round to talking about epilepsy, raising awareness, and improving education about epilepsy and seizures. Thank you for also raising your voices to help your loved ones and all who live with #epilepsy.
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@TalkAboutItOrg@BrainAblaze Thank you for all you do to help the community!
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@TalkAboutItOrgAs we get closer to the end of #EpilepsyAwarenessMonth, let’s go back to one of our core #epilepsy messages - don’t hesitate to talk about it. Please share your story. Did you ever first hesitate talking to someone, and then were glad you did?
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@TalkAboutItOrg@HadaFeminista I hope those people understand differently soon.
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@TalkAboutItOrgGreat question from @BrainAblaze. Thoughts, dear followers? #EpilepsyAwarenessMonth. https://t.co/dlYVSr4mJ6
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@TalkAboutItOrgOne of the most important tips we hear from #Caregivers is to make sure you take good care of yourself to be at your best to look after others. It’s a great tip! We love hearing from you to help share and strengthen each other and the community. Please keep those tips coming..
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@TalkAboutItOrgTwo of our co-founders are fathers of children living with #epilepsy. So, we know and appreciate the challenges and triumphs of parents of kids with chronic conditions. Here's a link featuring our co-founder @greggrunberg sharing key info for parents. https://t.co/AAV4VyAfNf
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@TalkAboutItOrgSharing more amazing and important comments. #Caregivers, make sure you do what you need to do to take care of yourself, too. We are all only our best when we take the time to rest, recharge, and focus. https://t.co/mjrTcZ1Qix
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@TalkAboutItOrgSharing some amazing comments from #Caregivers. https://t.co/7H8QLaIAcX
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@TalkAboutItOrgVery important question from @greggrunberg. #Caregivers, thoughts on advice and tips? Please share. https://t.co/kWjl1s38y2
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@TalkAboutItOrgWishing everyone a Happy Thanksgiving -- We hope you are finding time with family, with good food, with reflection, and most of all with happiness, and peace. We are so very thankful for all of you! https://t.co/L03zvU5o2i
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@TalkAboutItOrgThis #NationalEpilepsyMonth, we salute amazing organization that help and support the #Epilepsy community. We love our interactions with the professionals at the American Epilepsy Society. If you need to find a epilepsy specialist, check them out: https://t.co/c8IhYd4afz
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@TalkAboutItOrgExcellent story on #epilepsy facts for the more than 400,000 Latinos in the United States living with #epilepsy. The video features Chicago-area resources. https://t.co/wEWkU0Fu5w #EpilepsyAware #EpilepsyAwarenessMonth
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@TalkAboutItOrgLove this story of 11-year-old Anabela, who has not let her #epilepsy stop her from pursuing her fullest potential -- becoming a gymnast. Thank you to Anabela and her family for sharing her amazing story. https://t.co/uf7JusrmEq #EpilepsyAware #EpilepsyAwarenessMonth
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@TalkAboutItOrgIf you are getting on the road this week to travel over the river and through the woods to relatives for Thanksgiving, may we recommend letting @greggrunberg keep you company by catching up on our podcast series. https://t.co/KUwlbzuwXU
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@TalkAboutItOrg@BrainAblaze @StobiesGalaxy @klowenberg @greggrunberg Thank you... as do you. You do amazing work, too.
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@TalkAboutItOrgAs we enter Thanksgiving week, all of us at Talk About It are thankful for the amazing people we meet every day in the #epilepsy community, including parents, caregivers, advocates, and especially people living with epilepsy. Your strength, passion, and dedication are inspiring.
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@TalkAboutItOrgThis #NationalEpilepsyAwarenessMonth, we salute important epilepsy organizations . This write-up on the CDC website about our friends at the Epilepsy Foundation of Central and South Texas @EFCST caught our eye. Amazing people helping a diverse community. https://t.co/eBtczwSLrx
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@TalkAboutItOrgWe are fortunate to have so many amazing #epilepsy advocates and friends following us. Check out our followers list. Find new new friends, too. We encourage all of you to talk about it more together, always, but especially during #NationalEpilepsyAwarenessMonth. Thank you!
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@TalkAboutItOrgWe are saluting and recognizing amazing #epilepsy organizations this #NationalEpilepsyAwareness Month. Today, we salute our friends at @CureEpilepsy, and share the latest news from their CEO. Thank you, Cure Epilepsy, for your passion and commitment. https://t.co/vg7SUkes8l
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@TalkAboutItOrgMany people with #epilepsy continue to have seizures even though they are taking medicine. Learn four ways from our friends at the @CDCChronic about how to get better control of epilepsy and seizures. https://t.co/ogvgf3d9a9 #EpilepsyAware #NationalEpilepsyAwarenessMonth'
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@TalkAboutItOrgNEWS: Can #seizures be reliably forecast? A new study says very possibly with wrist-worn devices. #Epilepsy #NationalEpilepsyAwarenessMonth2021 https://t.co/JjQVOEEgsV
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@TalkAboutItOrgToday, and every day, we honor and thank all those who have served to protect and defend our lives and our liberties. #VeteransDay2021
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@TalkAboutItOrgThank you @WhiteHouse for talking about #epilepsy and. #SeizureFirstAid for #NationalEpilepsyAwarenessMonth. https://t.co/QRhXAOzzvp
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@TalkAboutItOrgNEWS: Study shows how #epilepsy and #autism are linked. Questions about these disorders include: Does autism lead to an increase in epilepsy? Or does epilepsy alter the brain circuit, which then leads to autism? https://t.co/hKWM8pN1IN #NationalEpilepsyAwarenessMonth
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@TalkAboutItOrgThis is a tough topic, but a very important one. Not enough is being said about Sudden Unexpected Death in #Epilepsy (SUDEP), not even between health care providers. This story from the @AmerAcadPeds sums up why it matters to talk about it. https://t.co/fHy72m4utB #EpilepsyAware
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@TalkAboutItOrgThe #epilepsy community is strong, resilient and compassionate. Here's another example: Meet Dan. "I will not let epilepsy define me, my career, or my goals in life." https://t.co/bbj3kS0QVn Thank you, Dan (and @EpilepsyRUK), for talking about it! #EpilepsyAware #NEAM2021
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@TalkAboutItOrgNews: A recent study showed the most frequent conditions occurring along with #epilepsy are anxiety and mood disorders, hypertension, back problems, developmental disorders, and headache. https://t.co/ic3l2DkmrA
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@TalkAboutItOrgFootballer star Matt Crooks talks about what it is like to live with #epilepsy. "[Epilepsy] stopping me from becoming a professional footballer was never a thought that ever entered my mind." Thank you, Matt, for talking about it! https://t.co/FaQHPBOwYB #EpilepsyAware
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@TalkAboutItOrgFor National #Epilepsy Awareness Month, we salute organizations doing great work for our community. Today, we recognize the amazing team at https://t.co/0GNnCjsX7V Thank you!! TSC is a leading genetic cause of both epilepsy and autism. #EpilepsyAware #NEAM2021
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@TalkAboutItOrgThe power of football is an amazing thing! Thank you, Paul, and to all your teammates at Braunton FC Inclusion Team, for showing everyone that having #epilepsy and #autism should not stop anyone from reaching toward their fullest potential! https://t.co/hFf9B62Pzp
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@TalkAboutItOrgAbout 1 in 10 people may have a #seizure during their life. Seizures are common. You might need to help someone during or after a seizure. Learn what you can do to keep someone safe until the seizure stops by itself. https://t.co/UqPjtx82rf https://t.co/yod2YJWkNQ #NEAM2021
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@TalkAboutItOrgOn our latest podcast episode, @greggrunberg and his guest talk about challenges and motivations of being a father in a family living with #epilepsy. Don't miss it! Special thanks to @GreenwichBio for sponsoring our podcasts. https://t.co/sjTYmBEJ27 #NEAM2021 #EpilepsyAware
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@TalkAboutItOrgWe salute and recommend amazing organizations this #NationalEpilepsyAwarenessMonth @curedravet Dravet syndrome is a rare form of intractable epilepsy that begins in infancy and significantly impacts people through their lives. https://t.co/ZOaerLbqnd. https://t.co/N9QVX10vgL
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@TalkAboutItOrgSeizure management is key to getting better control of your #epilepsy and your life. Check out this Managing Epilepsy Well checklist from our friends at the CDC. #EpilepsyAware #NationalEpilepsyAwarenessMonth2021 https://t.co/XFDfT9YKsl
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@TalkAboutItOrgAnyone can develop #epilepsy ... regardless of age, race, or gender. Most cases of epilepsy develop in the young and the old... but not always. #EpilepsyAware #NationalEpilepsyAwarenessMonth2021 https://t.co/c1lzTvyHL4
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@TalkAboutItOrgThank you, @GovAndyBeshear, for setting an outstanding example in leadership. Thank you also to the whole team at @efkentuckiana for their amazing work on behalf of everyone living with epilepsy. https://t.co/2MzTsIEZQz
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@TalkAboutItOrgA #seizure is a short change in normal brain activity. Seizures are the main sign of #epilepsy. Some seizures can look like staring spells. Others cause a person to fall, shake, and lose consciousness. #EpilepsyAware #NationalEpilepsyAwarenessMonth2021 https://t.co/xSQBSBlh4j
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@TalkAboutItOrg#Epilepsy -- sometimes called a seizure disorder, -- is a disorder of the brain. A person is diagnosed with epilepsy when they have had two or more seizures. #EpilepsyAware #NationalEpilepsyAwarenessMonth2021 https://t.co/CIiuUjvEBO
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@TalkAboutItOrgOne in 26 people will develop epilepsy in their lifetime. #EpilepsyAware #NationalEpilepsyAwarenessMonth2021 https://t.co/xSQBSBlh4j" target="_blank">https://t.co/xSQBSBlh4j https://t.co/xSQBSBlh4j" target="_blank">https://t.co/xSQBSBlh4j
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@TalkAboutItOrgOn this #LGSAwarenessDay, please check out our deep-dive interview with @LGS_Foundation leader Tracy Dixon-Salazar. She is a mom, advocate, and scientist/researcher on the front lines of new treatment options for this rare #epilepsy. https://t.co/gzmw51lQtJ
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@TalkAboutItOrgToday is #LGSAwarenessDay. Lennox-Gastaut Syndrome is a brain disorder frequently evolved from early-onset epilepsy. Typical brain development is disrupted. Learning will be difficult. Please visit and support our friends at https://t.co/jM3lZPtRyf https://t.co/KsudubGLjp
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@TalkAboutItOrgToday starts National Epilepsy Awareness Month. This is a time to celebrate the bravery, strength, compassion, and resilience of the entire #Epilepsy community. We join with all of you in raising awareness and improving education for the whole world. #EpilepsyAware #NEAM2021
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@TalkAboutItOrgAnother #Halloween tip for parents and caregivers of kids with #epilepsy. If you child is on the #KetogenicDiet, they can still have a great time trick-or-treating -- and choose to donate their candy to good causes. See this article for ideas: https://t.co/kHetVY3bwG
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@TalkAboutItOrgWe love seeing stories like this! Thank you, Evie, for setting an incredible example. DO NOT let #epilepsy (or any health condition) stop you from striving toward your fullest potential. Congrats, Evie, on running your marathon! https://t.co/vcXzO7VunS
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@TalkAboutItOrgNational Epilepsy Awareness Month starts Monday. We'll celebrate the #epilepsy Community's power and strength. We will be sharing tips, facts, resources, and stories all month. We encourage you to share what you want the social-sphere to know about epilepsy, too. #EpilepsyAware
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@TalkAboutItOrgSharing some more #Halloween Tips for parents & caregivers of children with #epilepsy: Make sure your children go out in a friend group that includes someone who knows #SeizureFirstAid. Make sure the friends watch 'Kirk' and 'Spock' talk about it: https://t.co/UqPjtx82rf
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@TalkAboutItOrgParents and caregivers. Please help our good friends at @DannyDidOrg by participating in this survey about helping healthcare providers better talk about #SUDEP. https://t.co/JR58qC0uaF
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@TalkAboutItOrgSharing some #Halloween Tips for parents and caregivers of kids with #epilepsy: Although the temptation will certainly be there, make sure kids don't stay up later than their normal bedtime Sunday night ... especially if stress or sleep is a seizure trigger.
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@TalkAboutItOrgRT @greggrunberg: #Hero @TalkAboutItorg https://t.co/nZyTGXGWTk" target="_blank">https://t.co/nZyTGXGWTk
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@TalkAboutItOrgSharing important #Halloween safety tIps this week for parents and caregivers of children with #epilepsy -- Make sure your child has a teenager or adult with them. If a child has a seizure while trick-or-treating, it might otherwise go unnoticed with all the night's activities.
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@TalkAboutItOrgSharing important #Halloween safety tIps this week for parents and caregivers of children with #epilepsy -- If appropriate, make sure your child has taken their medication Sunday night before they go out Trick or Treating.
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@TalkAboutItOrgThank you @epilepsy_dad for sharing your son's journey to getting a seizure dog... this video really touched our hearts. Listening to your son talk about his new pup, and to see his excitement is just a gift. https://t.co/AeEaCaJcEa
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@TalkAboutItOrgOne very important way to help mitigate risk of Sudden Unexpected Death in Epilepsy (SUDEP) is to make sure you are taking your medications and following your seizure treatment program as prescribed from your health care team #Time2Change #SUDEPActionDay https://t.co/A4UW3op87D
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@TalkAboutItOrgOne way to mitigate the risk of #SUDEP is to understand your seizure triggers and make sure you avoid them. Listen to @GregGrunberg talk to one of our best #epilepsy specialists about it (with an assist from @SeanHayes). #Time2Change #SUDEPActionDay https://t.co/FZjzW1H3R2
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@TalkAboutItOrgToday, on #SUDEP Action Day, we want to make sure you know the ways to mitigate the risks of Sudden Unexpected Death in Epilepsy. #TIme2Change (Thank you @CureEpilepsy and @CDCChronic for the graphic.) https://t.co/r2BFgE3pC6
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@TalkAboutItOrgToday is #SUDEP Action Day. Here are some key risk factors you need to know about Sudden Unexpected Death in Epilepsy. #Time2Change (Thanks to our friends at @CUREepilepsy and @CDCchronic for the graphic) https://t.co/8MzyGxBlzt
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@TalkAboutItOrgToday is #SUDEP Action Day. We proudly join with the mission that it is #Time2Change what people know about SUDEP. To learn more about the day and what you need to know about SUDEP, visit our friends at @CureEpilepsy https://t.co/JPyI5Lp7a9
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@TalkAboutItOrg@Ms_Demeanor77 We are so sorry to hear this. Reggie sounds like an amazing guy. Please let him know that bullies are cowards... and his courage, character and heart will rise up above any bully. Please also share this with Reggie: https://t.co/TRHxr3duV8
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@TalkAboutItOrgWe just recorded a brand new episode of our podcast last night with a group of amazing people. We can't wait for you to hear their stories a bit later this year. In the meantime, catch up on "Talk About It with @greggrunberg" wherever you listen to your podcasts. https://t.co/hGdGYBaQBg
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@TalkAboutItOrgWe applaud tri-athlete Annie Brooks for talking about how she did not let her #epilepsy stop her from reaching her fullest potential. She is a great model for all of us. https://t.co/gbCErbBjne
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@TalkAboutItOrgNews: A new method of targeting the parts of the brain most prone to seizure activity could enable more accurate diagnosis and guide more precision surgical options. https://t.co/YaWMTJ2dN1
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@TalkAboutItOrgThank you @DDawkins66 and the @BuffaloBills for helping this family during a time of great grief and loss. https://t.co/c97moQ5Q0l
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@TalkAboutItOrgThank you to the @DeptVetAffairs for created an #Epilepsy Centers of Excellence, including a collection of on-demand caregiver webinars on topics such as memory, self-management, women’s issues, and types of treatments. https://t.co/LOKNSAw1bo
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@TalkAboutItOrgMozart May Stop Seizures: A new study shows why listening to some pieces by Mozart, namely Piano Sonata in C Major (K545) and Sonata for Two Pianos in D Major (K448), can have anti-seizure properties. https://t.co/C510RMtSHn
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@TalkAboutItOrgCongratulations to @EpilepsyFDN on the second anniversary of their Seizure Safe Schools Initiative. https://t.co/wJIXpEdq2R
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@TalkAboutItOrgHere is an excellent article about how to talk about seizures with children living with #epilepsy: https://t.co/9sxPtmmMJJ
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@TalkAboutItOrg#Epilepsy can be extremely hard to diagnose, which is why it is so important to go to your doctor and let them know if anything is amiss. A women talks about how it took 10 years for a proper diagnosis: https://t.co/CBTgfBAwRY
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@TalkAboutItOrgNew research suggests a natural brain phenomenon could be used as a treatment for #epilepsy. https://t.co/i8D5dKPrFK
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@TalkAboutItOrgWhy are people in Texas painting their pumpkins purple this fall? https://t.co/aGo5Tz7lik
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@TalkAboutItOrgTwo giants of #epilepsy awareness are talking about it in our latest podcast episode. Join @greggrunberg and @djhapa as they share stories of inspiration and spin tales of DJ-ing and music. https://t.co/BhfwTghsHl